Make a Sound for a Cure to be Found - Inaugural Event!
An amazing community in Waterloo, Iowa kicked-off the first annual "Make a Sound for a Cure
to be Found" 5K Run/Walk/Roll on June 2nd. Jessica Stakey, an Instructional Strategist at Lou Henry Elementary School, led the fundraising effort and worked to ensure a great turnout! The "Make a Sound" theme meant that participants brought noisemakers of all kinds to show their support in memory of Nick Wellner and in honor of Jaxton Engstrom. Both families are beloved members of the Waterloo community. The community weaved in education along the 5K route, with sounds sharing facts about Jaxton, Nick and Batten disease. The event wrapped up with a silent auction and the total amount raised was more than $6,000! The Waterloo community is already looki
ng forward to next year's event aligning with International Batten Disease Awareness Day.