Fundraiser Highlight: The Medley Family!
On Saturday, May 26th, the Medley family hosted the 3rd annual "Kick Batten for Jake" kickball tournament and silent auction, in memory of their son and brother, Jake, who passed away in 2014 from CLN2. The tournament was the most successful one yet, as they raised $5500.00 for BDSRA! Everyone had a fantastic time, and team "Champions" won for the 3rd year in a row! The Medley family can't wait to host the 4th annual tournament in 2019, as they continue to honor Jake and support BDSRA, whose members were an incredible support to them the 5 years that Jake endured living with Batten disease.