Study Announcement: Symptoms and Daily Function
Researchers at the University of Rochester (Rochester NY USA) and Cardiff University (Cardiff, Wales, United Kingdom) are conducting a research study of children with genetic disorders that can result in autism, developmental and intellectual disability, seizures, challenging behaviors, movement disorders, vision/hearing loss, or any combination of these problems.
Parents/caregivers will complete an anonymous, online survey about the symptoms and daily function of the affected individual. The goals of the study are to learn more about a variety of disorders, and expand access to research by using an online survey that can be completed from any place in the world.
You can see the study flyer
To learn more about the study, or participate, please visit the study web page at:
You can also contact the study team directly with questions:
Phone: (585) 275-9330 [secure messages can be left at this number]