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2023 Monthly Newsletter

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A note from Debbie....

Photo of Debbie Dietz accepting City of Miami award

Debbie Dietz accepting the Legacy Partners Award for

Disability Independence Group

at the

50th Anniversary Gala

for the

City of Miami Parks

Therapeutic Recreation & Inclusion Division

This month we want to share with you several resources that are specific to voting. We are heading into the election season, and we want everyone to be prepared, get registered, and have plenty of time to learn about the candidates, the issues, and all of the ways that you can vote.


We also want to recognize that October is Breast Cancer Awareness Month with an article by Justine; Domestic Violence Awareness Month with our support of the #1thing campaign; and National Disability Employment Awareness Month with resources from Lesly.


I hope everyone is enjoying fall and getting ready for the holiday season! 

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Featured Article

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VoteRiders

By: Eli Garcia

VoteRiders provides one-on-one assistance for community members in obtaining state identification that is acceptable for voting. We are a national 501(c)(3), non-partisan, non-profit founded in April of 2012 and the nation's leading organization focusing exclusively on voter ID.


We inform and help citizens secure their voter ID and inspire and support organizations, local volunteers, and communities to sustain voter ID education and assistance efforts. We concentrate primarily on helping voters to obtain the documents required by a state's voter ID law.


Fifty-two million+ Americans are living in the states with voter ID laws, and twenty-nine million+ who are voting age do not have a current state ID or Driver's License, one of the two forms of ID accepted for voting in every state. Voter ID laws can intimidate and are challenging to understand, and they're constantly changing, and it can be different for voting in-person versus voting by mail. VoteRiders Florida has been working continuously with voters to ensure that they have their ID for voting. We know that this can be expensive and time-consuming for voters. VoteRiders assists voters with the cost of their Florida identification, driver's license, birth certificate, and transportation to the DMV or Social Security office.


An ID is essential to vote, but also for everyday life. The community members we assisted have claimed that their ID has saved their lives. IDs provide access to medical care, housing, and employment security for the most marginalized. ID issues affect those historically facing hurdles in accessing the ballot box. This includes voters of color, voters with disabilities, LGBTQ+ voters, and women voters. These are the voices that our community partners work to uplift year-round. VoteRiders are working hard to uplift these voices.

VOTING RESOURCES

Access the Vote Florida Videos

Access the Vote Florida

Virtual Summit 2023


Watch the Entire Summit:

https://youtu.be/e3kc0yq4Kj4?si=6f68vPnhIc_WC4Su


Watch Panel 1: Disabled in Politics, Elections & Leadership:

https://youtu.be/e3kc0yq4Kj4?si=-vIk3YmdI1axsl8l


Watch the Keynote: Andrew Pulrang and Gregg Beratan, Co-Founders of #CripTheVote with Alice Wong:

https://youtu.be/e3kc0yq4Kj4?si=HMCXs3Rpv6d7ufG-


Watch Panel 2: 2024 Election & Voting Landscape:

https://youtu.be/e3kc0yq4Kj4?si=G5MmKea4s6dOpO_B


Watch Panel 3: Supervised Voting and Rights Restoration:

https://youtu.be/e3kc0yq4Kj4?si=Tr8eO0YxPUPIwvfd


Access the Vote Florida Remote Accessible

Vote by Mail Brochure

               

English


Spanish


Creole

Links to Voting Resources

Register to Vote


Check to make sure you are registered to vote


Pledge to Vote


Find out what is on the ballot


Florida Supervisors of Elections

Florida Find your County’s Supervisor of Elections


Access the Vote Florida Website


Access the Vote Florida YouTube Channel


Access the Vote Florida Podcast


AAPD – REVUP Voting Campaign

AAPD 2024 Presidential Candidate Survey


AAPD State Guides for Disabled Voters


Voter ID info for Voters with Disabilities


Vote Riders


Vote 411

Breast Cancer Awareness Month Graphic

The View From Here

By: Justine Chichester

“Having had Cancer, one important thing to know is you’re still the same person at the end. You’re stripped down to near zero. But most people come out the other end feeling more like themselves than ever before.”Kylie Minogue, Australian pop singer, diagnosed with Breast Cancer at age 36

 

In 2019 I went to my primary care physician for a routine follow up. I was in the midst of recovery from a spinal cord injury, two thoracic spine surgeries and hydrocephalus which resulted in brain surgery and shunt placement in my brain. I had really been through so much, and the visit to my “regular” doctor was just supposed to be a routine follow up. During my visit, she said to me, “You turned 40 while you were in the hospital, after your fall, so you haven’t had a mammogram yet. And you need to schedule one as soon as possible.”

 

Now, the last thing I wanted to do was yet another medical test. Over the past several years since my fall, since my spinal cord injury, I had more tests done than you can possibly imagine. Plus, I didn’t have any symptoms, I didn’t feel any lumps or bumps. And, I was in a wheelchair. How was I possibly going to do a mammogram in a wheelchair? I didn’t see any need for yet another test, especially right now.

 

I explained all of my “reasons” (which were actually excuses), to my doctor, but she gave me the prescription anyway and she insisted I go for the mammogram as soon as I could. It was a struggle for me, at first, to find a place that would accommodate me, in my chair, for the mammogram. Baptist Hospital ultimately was the place and I went for the mammogram. I was shocked when they informed me that they found a mass that appeared to be “lobular.”

 

I felt like I was in the Twilight Zone. I thought I was done with all of this medical stuff. Hadn’t I already done my time…endured enough? I’ve never, ever been someone who complained, but, really, hadn’t I been through enough? More tests ensued after the mammogram, and I ultimately got the call, that I indeed had Breast Cancer.

 

After finding the right surgeon, Dr. Mautner at The Miami Cancer Institute, and coming up with a plan with her, along with my family, I had a lumpectomy and subsequent 6 weeks of radiation. And, although the journey has been long and difficult, I endured, I survived and I live to tell the tale today. All because I got that mammogram I so did not want to do.

 

If I can go, in my wheelchair, after all of the medical issues and tests I had just been through, and get my mammogram, so can you. I know it can be scary. I know it’s a hassle. I know you have to find the time, I know you have a million things to do and you really don’t want to do it. But early detection is the key. If there is something there, you need to know now so you can take care of it and keep your life going. And, most importantly, keep on living…Just like I did!

 

“More than 10 million Americans are living with Cancer, and they demonstrate the ever-increasing possibility of living beyond Cancer.”Sheryl Crow, American musician and singer-songwriter, diagnosed with Breast Cancer at age 44, after a routine mammogram that she almost skipped


Photo of Justine with Baptist Hospital Radiation Staff
Photo of Justine and Mom standing in front of bell
September Supper Social Club Collage
Supper Club Flyer
Hurricane Prep Blog Flyer

Miami Inclusion Alliance (MIA)

By: Sharon Langer, Esq.

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#1 Thing Logo Graphic
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October is Domestic Violence Awareness Month.

This year to recognize DV Month, the Miami Inclusion Alliance will join the National #1Thing campaign.


I am excited to share with you information about the campaign and how all our partners and liaisons will participate.


The #1Thing campaign challenges each of us to identify new ways to move forward together towards ending domestic violence. It recognizes how each one of us can make a difference.

It reminds us that we each have a voice and that voice can make a difference and that change can start with each of us doing just one thing. 


I love this quote from Malala Yousafzai, “When the whole world is silent, even one voice becomes powerful.”


One person’s actions have proven to create positive change so many times in our history. One thing may seem insignificant, but put together with one thing done by many, causes real transformational change to occur.


This month the MIA partners and Liaisons have each committed to participate in the #1Thing movement.


I want to share their thoughtful commitment to action and the #1Thing they are going to do. 




Photo of Camilo Mejia

MIA Liaison

Camilo Mejia  


"I plan to ensure that staff from Catalyst Miami's Prosperity team actively participate in CVAC and CARE meetings from here on. This action aims to strengthen our community partnerships and contribute to addressing domestic violence more effectively."


Photo of Kat Magnoli

MIA Liaison

Kat Magnoli


"The #1 thing I will do is educate about the intersectionality of disability and abuse through writing, public speaking, both about my personal story and the statistics of those suffering and/or surviving throughout the community."

Photo of Rachel Siler

MIA Liaison

Rachel Siler


"I will have Center for Independent Living, South Florida, where I work, provide information about DV Month on all our social media. I will send an all-staff email announcing its DV month and ask them to spread the word." 





Photo of Genesis Espaillat

MIA Liaison

Genesis Espaillat


"I always mention that I am a liaison to the Miami Inclusion Alliance when I talk to new people. One thing I will do this month for Domestic Violence month, is to continue sharing the resources the MIA has developed because I know they will be helpful for others. I will share them on my Instagram story."

MUJER Logo


MIA Partner

Susan Rubio Rivera

Executive Director MUJER


"I commit to supporting our DV survivors by intentionally listening to their stories with a non-judgmental ear and by promoting their inherent value."

Dade Legal Aid Logo


MIA Partner

Brenda Rivera-Senior Supervising Attorney Dade Legal Aid


"This DV month I will be using outreach opportunities all month, to bring awareness of the legal assistance that is available, to assist survivors of intimate partner violence. Many survivors do not realize this this type of help is available to them."  

Logo for Miami Dade County

MIA Partner

Ana Lorenzo

Acting Division Director

CVAC 


"In commemoration of Domestic Violence Awareness Month, I am going to host a table on behalf of my agency CVAC, at the Miami-Dade County annual DV Month Fair. It will take place at Miami-Dade County Government Center, and it is expected that hundreds will have an opportunity to visit tables hosted by agencies that provide services for DV prevention in the county. It is a chance to showcase this important issue."  

DIG Logo

MIA Partner

Debbie Dietz

Executive Director

Disability Independence Group Inc. 


"I am going to make all of the Miami Inclusion Alliance tools available to anyone that needs them for free on our website."

My challenge to you as you read this article is - What is Your #1Thing?


Here are some resources if you want to participate in the #1Thing Campaign:


The National Resource Center on Domestic Violence- VAWNET has taken the lead on this initiative. They have created a toolkit to assist organizations wanting to participate.


How To Get Help


The National Sexual Violence Resource Center (NSVRC)

 ​

The National Sexual Assault Hotline by RAINN: 1-800-656-4673​

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In Florida: The Florida Council Against Sexual Violence (FCASV) Helpline: 1-888-956-7273​

 ​

In Miami: The MUJER Helpline: 305-763-2459​

 ​

In Miami: Miami-Dade County Coordinated Victims Assistance Center (CVAC): 305-285-5900 (call or text)​

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Photo of the Wallet Card Project Participants

Helping People with Disabilities Communicate with First Responders.


This project has several components:


  • We make customized wallet cards for people living with intellectual/developmental disabilities and Autism.


  • We make customized caregiver wallet cards for caregivers of people living with disabilities.


  • We have an online training program for law enforcement.


  • We have a program for schools, parks programs, or community organizations.


Please click the link below to learn more about this project and to order your own customized wallet card or caregiver card.


If you have any questions, please email Debbie at debbie@justidigit.org.

Order a Wallet Card Here
Give Miami Day Save the Date

Mark Your Calendars!

DIG is participating in Give Miami Day!


Early Giving is November 13 - 15

Give Miami Day is November 16


Every Dollar Counts!

For more information on how to donate, go to: https://www.givemiamiday.org/organization/justdigit

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Subscribe to the Florida Access Coalition Mailing List to get the Most Updated Information!

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Benefits Information

By: Lesly Lopez

Work incentives Protecting Health Coverage for People with Disabilities

 

Many SSA beneficiaries are afraid of losing their health insurance coverage because of employment however SSA provides protections to SSA beneficiaries to be able to work and keep their Medicare or Medicaid.

 

Extended Medicare Coverage for Working People with Disabilities. Beneficiaries receiving SSDI.

 

As long as your disabling condition still meets our rules, you can keep your Medicare coverage for at least 8 ½ years after you return to work. (The 8 ½ years includes your nine month trial work Period)

Your Medicare hospital insurance (Part A) coverage is premium-free. Your Medicare medical insurance (Part B) coverage will also continue. You or a third party (if applicable) will continue to pay for Part B. If your Social Security Disability Insurance cash benefits stop due to your work, you or a third party (if applicable) will be billed every 3 months for your medical insurance premiums. If you are receiving cash benefits, your medical insurance premiums will be deducted monthly from your check.

 

Continued Medicaid Eligibility (Section 1619(B)). Beneficiaries receiving SSI.

 

One of the biggest concerns SSI beneficiaries have about going to work is the possibility of losing Medicaid coverage. Section 1619(b) of the Social Security Act provides some protection for these beneficiaries. To qualify for continuing Medicaid coverage, a person must:


  • Have been eligible for an SSI cash payment for at least 1 month;
  • Still meet the disability requirement; and
  • Still meet all other non-disability SSI requirements; and
  • Need Medicaid benefits to continue to work; and
  • Have gross earnings that are insufficient to replace SSI, Medicaid and publicly funded attendant care services.

 

This means that SSI beneficiaries who have earnings too high for a SSI cash payment may be eligible for Medicaid if they meet the above requirements. SSA uses a threshold amount to measure whether a person’s earnings are high enough to replace his/her SSI and Medicaid benefits. This threshold is based on the:


  • Amount of earnings which would cause SSI cash payments to stop in the person’s State; and
  • Average Medicaid expenses in that State.


If a SSI beneficiary has gross earnings higher than the threshold amount for his/her State, SSA can figure an individual threshold amount if that person has:



The state of Florida 2023 annual threshold amounts for disabled and blind beneficiaries is $37,379.


Other health care coverage options:

 

Market Place or Affordable Care Act


A service that helps people shop for and enroll in affordable health insurance. The federal government operates the Marketplace, available at HealthCare.gov, for most states. Some states run their own Marketplaces.


The Health Insurance Marketplace (also known as the “Marketplace” or “exchange”) provides health plan shopping and enrollment services through websites, call centers, and in-person help.


When you apply for individual and family coverage through the Marketplace, you’ll provide income and household information. You’ll find out if you qualify for:


  • Premium tax credits and other savings that make insurance more affordable
  • Coverage through the Medicaid and Children’s Health Insurance Program (CHIP) in your state


On HealthCare.gov, you may be asked to select your state or enter your ZIP code. If you live in a state that runs its own Marketplace, we’ll send you to your state’s Marketplace website.

 

Medicaid Share of Cost or Medically Needy



The Department of Children and Families (DCF) determines eligibility for the Medically Needy Program. It may also be referred to as the “Share of Cost” program. The Medically Needy Program assists individuals who would qualify for Medicaid except for having income that is too high. Individuals enrolled in Medically Needy may have a monthly “share of cost”, which is similar to an insurance deductible. The share of cost is determined by household size and gross monthly income. When there are changes to the household size and income, the share of cost amount may change.


Some examples of medical expenses that can be used to meet the “share of cost” • Unpaid medical bills owed that have not been used to meet the share of cost before. • Medical bills the individual paid within the last three months. • Health insurance premiums • Medical bills that will not be paid by health insurance or any other source. • Co-pays for medical bills. • Medical services prescribed by a doctor. • Transportation by ambulance, bus or taxi to get medical care.

For more information about the Medicaid share of cost please visit: http://www.myflorida.com/accessflorida/

 

Community Health clinics CHI


Community Health of South Florida Inc. is a nonprofit health care organization providing affordable quality primary and behavioral health care services to the residents of rapidly growing South Florida. CHI operates 11 state-of-the-art primary care centers and 31 school-based programs. All centers offer quality comprehensive primary and behavioral health care services. Our physicians are board certified or board eligible. Additionally, CHI is accredited by the Joint Commission and is accredited as a Level 3 Patient-Centered Medical Home by the National Committee for Quality Assurance (NCQA). CHI offers a “one-stop-shop” model where the organization and delivery of quality services are seamless, affordable, accessible and culturally sensitive.


For more information visit: http://www.chisouthfl.org/

 

Find Help with cost of Medicine:


NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.


Our Support: Access to our information is completely free. We don’t charge for any help we provide. Financial support comes from individual donations, corporate donations and grants, supporters who advertise on the website, syndication of our information, fees for assisting pharmaceutical manufacturers in running their patient assistance programs, our drug discount card, and from the use of PAPTracker™, our software that helps clinics and other organizations simplify the program application process. For more information visit: https://www.needymeds.org/

 

 

If you are a SSI or SSDI beneficiary requiring an individualized analysis of your situation please contact the Community Work Incentives Coordinator or benefits Planner in your area. For South Florida contact the WIPA project at 305-453-3491


Lesly Quintanilla Lopez

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Access The Vote Florida (ATVFL) is a state chapter of AAPD’s REVUP Campaign. REV UP stands for: Register! Educate! Vote! Use your Power!


The chapter is a statewide coalition of organizations and self-advocates that are working to raise awareness about issues that impact persons with disabilities, encourage people with disabilities to participate in the voting process, and educate elected officials on issues important to persons with disabilities.


Email Olivia at oliviab@drflorida.org to get on our mailing list.

ATVFL Website

Vote-by-Mail and How to get an Accessible Vote-by-Mail Ballot

By: Deborah Dietz


At the end of 2022, all requests for vote-by-mail ballots expired. This was because of a new state law passed in 2021.


What this means is that if you want to continue to vote-by-mail you need to submit a new request to the elections department.


In Florida, if you are a voter with a qualified disability under the Americans with Disabilities Act (ADA) you have the option to receive an accessible vote by mail ballot by email. This option allows voters to cast their ballot independently without the assistance of another person.


Click here to request a vote-by-mail ballot in Miami-Dade County.


Click here to request an accessible vote-by-mail ballot in Miami-Dade County.


*NOTE: Requesting the accessible ballot will prompt the paper and electronic portions to be sent to the voter.


If you have any questions, please contact the Miami-Dade County Election’s Department at soedade@miamidade.gov or 305.499.8509 with any questions you might have regarding this program.


Voters who have questions should email votebymail@miamidade.gov or call 305.499.8444.

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City of Coral Gables Events

 

If you have any questions, please email the City at PlayForAll@coralgables.com

The 988 Lifeline

blue square with 988 suicide and crisis lifeline written in the middle

988 is now active across the United States.

988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline) and is now active across the United States.


When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network. These trained counselors will listen, understand how their problems are affecting them, provide support, and connect them to resources if necessary.

 

This new, shorter phone number will make it easier for people to remember and access mental health crisis services.

(Please note, the previous 1-800-273-TALK (8255) number will continue to function indefinitely.)


LEARN MORE

DIG Litigation Update

Litigation Update:

 

Disability Independence Group’s Litigation Department closed in

2022.

 

If you have a disability legal question, you can contact Professor Matthew Dietz at the Disability Advocacy and Inclusion Law (DIAL) Clinic at Nova Southeastern University Law School. His email is: mdietz@nova.edu.

 

If you have a disability education issue, such as an IEP or Exceptional Student Education, you can contact Stephanie Langer at Langer Law, PA. Her email is: helpline@langerlawpa.com.

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Your Upward Journey


Your Upward Journey – It is Easier Than You Think, by Patricia Perisse Bochi 


A three-part project that includes:a book, self-help seminars, and merchandise.


Click Here for More Information

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