December 2020 eNewsletter
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
Big News: More Match Funds Available to Double Your Year-End Gift

We recently announced that $50,000 in matching funds were available to match year-end gifts to the IFOPA. Two more generous donors stepped forward and the match funds are now up to $70,000.

Your year-end gift will be matched dollar for dollar up to $70,000 so right now is the perfect time to give! Please make a gift today that will be doubled and have twice the impact.

2020 Virtual Family Gathering Video Now Available on YouTube

Did you miss out on registering a family member or your local health care provider for the 2020 Virtual FOP Family Gathering? We are pleased to now be able to share access to the majority of the 2020 Virtual FOP Family Gathering general session presentations on YouTube.

The YouTube platform will allow community members who did not register to attend the Family Gathering or who need access to translation after the live event has ended to enjoy the presentations.

Don't forget if you registered for the Family Gathering you can still log in to the virtual platform and watch presentations and enter the Exhibit Hall for up to one year.

Let It Go, Let It Go, Let That Vehicle Go to the IFOPA!

If the weather outside is frightful, and your car has been less than delightful—don’t settle for a trade-in value that’s low. Donate it to the IFOPA and let it go! The good feelings of giving will last longer than some cash in your pocket.

Join the New FOPOnline Google Group

Yahoo! recently announced that they are ending their group email platform. Unfortunately, this was the platform used by the IFOPA to host the email group FOPOnline.

FOPOnline was created before there was social media. Many FOP families stay connected to us through social media, but the IFOPA has always maintained the FOPOnline group for those who are not active on social media. Any post that is on social media is cross-posted to FOPOnline every Monday.

We are moving FOPOnline to Google Groups. Please remember that FOPOnline is for FOP families only.

Ability Toolbox Online Guidebook Now Available

FOP families can now access the Ability Toolbox Online Guidebook a database of adaptive tools, equipment, home modifications and tips to support those with FOP in living more independently.

We are grateful to our Ability Toolbox sponsors for helping us grow the program's offerings The Radiant Hope Foundation, Regeneron Pharmaceuticals, Ipsen and Blueprint Medicines