In December, the IFOPA held its annual vote for Board members. Each person that serves on the IFOPA's Board is nominated by the Board Development & Nominating Committee and then voted on by the IFOPA's members. According to the IFOPA's Bylaws, Board members may serve two three-year terms.
Becoming a Better Advocate for Yourself or Your Loved One
In 2021, the IFOPA will be offering a new program to help FOP families create change to ensure their needs are met. IFOPA staff, FOP community members and subject-matter experts will all contribute to the knowledge sharing and resource building that takes place throughout the series. All live program resources will be available with translation and content is geared towards international applicability!
The Advocacy Series will offer monthly opportunities for community members to:
Learn specifics skills to increase their confidence in communicating their needs
Hear from and connect with other members of the FOP community on the topic of advocacy
Be an active participant in practicing new skills through worksheets, Zoom meetings and webinars
Did you know the baby teeth of children and pre-teens with FOP can help FOP research? There is a short window of opportunity for receiving the teeth, so we've developed specific instructions for their handling and shipping. All postage is paid so it costs you nothing to help FOP research.
Please note: The teeth must be processed immediately to harvest the cells that help FOP research, so we are only able to accept baby teeth from the United States.
Take a Closer Look at the New Ability Toolbox Online Guidebook!
The new Ability Toolbox Online Guidebook went live in December 2020 with 12 different tool categories containing tools, tips and home modifications that can be used to make living with FOP more manageable.
Get a tour of the Guidebook and learn how you can share your knowledge and experience with others to make the Guidebook more valuable and the FOP community stronger and more successful!
The Ng family recently held its 2nd annual holiday fundraiser. Once again, their daughter, Haley, created beautiful Christmas-themed crafts for friends and family to enjoy. Their efforts and creativity raised nearly $1,500!