Your Monthly Update from NCDSA

Volume 1 Issue 11| November 2020

Visit with Santa - COVID Style

What has NCDSA been up to?

6 Welcome Baby Bags delivered in 5 NC counties
2 Prenatal Packets
2 New families connected to trained Parent Mentors
6 Moms participated in Moms' Night Out
13 Moms participated in Noche de Mamas and Moms' Night In
5 Parents participated in the Teen and Young Adult Parent Support Group
56 BINGO participants
93 Buddy Walk Teams participated in Buddy Walk in a Box Pickup Events
1,125 virtual participants attended the Virtual Triangle Buddy Walk from 87 North Carolina counties and 47 states
Exceeded our 2020 Triangle Buddy Walk fundraising goal! Thank you!
252 Volunteer hours

A few words about the Triangle Buddy Walk from one of our families: I know that 2020 is no ordinary year. I want to thank each of you and anyone else who I may be forgetting for all the dedication, effort, and creativity you put into this year's Buddy Walk. I know it wasn't easy—nothing this year is easy! But you all thought outside of the box and thought of so many wonderful ways to make the BW meaningful and fun! Thank you for all you do every day, but especially this year during BW season! We are so lucky to have you! Congratulations on a job well done and on reaching your fundraising goal! - A.M.

Calendar Information and Registration

Volunteer Spotlight

Sullivan “Sully” Reilly is a BINGO caller for the Teen & Adult BINGO Night. A high school freshman, he is the youngest of 3 boys and decided to get involved with NCDSA after hearing about BINGO Night from his good friend Melanie. Sully has enjoyed getting to know all the teens and young adults via ZOOM and loves to incorporate new and exciting features to the game. His favorite part of BINGO is creating a social environment. Not being able to be together in person can be isolating so it’s important for everyone to come together via ZOOM and share experiences. Whether it’s sharing something about your day, celebrating a birthday, or an impromptu dance party, it’s all about having fun! B-I-N-G-O!!!

The 2020 North Carolina Down Syndrome Conference, presented virtually on Saturday, November 21st, was a huge success. Participants from across North Carolina, the United States, and Canada spent the day hearing from experts in their fields covering 13 important topics covering the lifespan of an individual with Down syndrome. The goal of the NC Down Syndrome Conference is to improve the outcomes for people with Down syndrome. This could not be completed without the generous support of our sponsors. Thank you!

Información y Aplicación Español

Information and Application English

Monthly Research Focus

NCDSA is a proud supporter of the 1st Evidence-based

The lifespan of people with Down syndrome has increased from an average of 28 years in the 1980s to 60 years today. However, research and medical care has not kept up with the large number of people with Down syndrome who are living well into adulthood. North Carolina Down Syndrome Alliance is proud to share that we are addressing this by supporting the GLOBAL Medical Care Guidelines for Adults with Down Syndrome© that were published in the October 20, 2020 Issue of JAMA, the Journal of the American Medical Association. Publication in JAMA underscores the quality of the Global Guideline and ensures that clinicians across the U.S. have access to this important resource.

Learn More Here

Support NCDSA

Why support the NCDSA?

2020 has been an unprecedented year. Although many things have stopped or been suspended, babies with Down syndrome continue to be born. NCDSA supports new families during this challenging time with information, resources, and a way to combat isolation. Your tax-deductible donation allows NCDSA to continue to be an import lifeline.