Your Monthly Update from NCDSA

Volume 2 Issue 7 | July 2021

NCDSA sponsored event at

Kings Dining and Entertainment

141 Park at N Hills Street, Raleigh, NC

6:00 pm - 9:00 pm

Mothers and sisters of people with Down syndrome

Women with Down syndrome (age 18 years and older)

What to expect at the Triangle Buddy Walk (TBW) Kick Off Celebration:

Heavy hor d'oeuvres and beverages sponsored by NCDSA
Door prizes
Bowling and arcade games
Register for free for the TBW
Get help setting up your personal online TBW page
Hear about fundraising incentives and prizes
Learn what NCDSA does for you throughout the year
Find out the impact your fundraising has on the Down syndrome community
Visit and make new friends with other moms, sisters, woman with Down syndrome

Registration Required

Level ONE Details & Registration

What are parents saying about The Learning Program?

The learning program has helped me figure out learning strategies that work better for my child, that he is more receptive to and I have suggested those strategies to his teachers for implementing in the classroom.

Continuing to know that my child is capable regardless of her disability and the importance of teaching her in a way that ensures her success for better educational outcomes is key in advocating for my child in her IEP.

The sessions were great. As they were virtual, very convenient.

Level TWO Details & Registration

It's Official

The Down Syndrome Organ Transplant Nondiscrimination Act, HB 642, affectionately known as Bethany’s Law, was signed into law by Governor Roy Cooper on July 1st. North Carolina is now one of 27 states that recognizes the rights of people with Down syndrome and other disabilities to become organ transplant recipients. Bethany, her mother Robin Matthews, Thomas, and his mother, NCDSA Advocacy and Outreach Director, Donna Beckmann were also joined by bill sponsor Representative Michael Wray at the informal bill signing event at Halifax Community College. NCDSA would like to thank additional primary bill sponsors Representatives John R. Bradford, Donny Lambeth, and Pat McElraft.

Let's Cool Off

Join NCDSA for a fun morning at Lions Water Adventure where there is something for everyone. From the Lazy River to the Kiddie Lagoon to one of the three story Water Slides you are sure to have a good time while keeping cool.

Advance registration required by 8/4/21:

One person with Down syndrome and one guest free - courtesy of NCDSA
All additional attendees $10 per person discounted ticket with advance purchase
Children 2 and under are free

Connecting New and Expectant Moms

Join NCDSA, expectant moms, and moms of children with Down syndrome up to age 3. Meet us in the Cypress Room at the Greystone Recreation Center for a morning of fun and get to know other moms traveling on this journey together. Beverages and snacks will be provided by NCDSA. Babies, toddlers, and siblings are welcome. There is an indoor play area in addition to the meeting room.

The 2021 Annual Appeal is on its way to your mailbox via snail mail. A steady stream of donations have been received. Thank you to everyone who has donated. However, if you would like to make your Annual Appeal donation before the mail arrives, please visit the NCDSA online donation page or mail your check to:

NCDSA

PO Box 99562

Raleigh, NC 27624

Please write "Annual Appeal" in the memo.

Developmental Study for infants and children with Down syndrome aged 10-18 months and their parents

Speech Fluency in Down Syndrome Research Study for children and adults with Down syndrome age 6 and older

Accommodations at Work for individuals with intellectual disabilities ages 18-35

Improve Survey Forms Project for adults with IDD

Down Syndrome Medical Interest Group-USA has published an updated Intellectual and Developmental Disability COVID-19 Vaccination Position Statement

National Down Syndrome Society (NDSS) has partnered with Lyft to help cover the costs of transportation to COVID 19 vaccine appointments

First in Families NC has partnered with Quillo Connect to create an app to help people with disabilities, their families, and their networks. People ages 16 and up living with IDD can provide feedback to shape the Quillo Connect app for NC. If you're ready to help launch Quillo Connect in NC please complete the User Interest Form.

Do you have a child with special health care needs? NC Child is conducting a short survey to better advocate for families. Please take the Care for Caregivers survey.

Volunteer Spotlight

Anthony “Tony” Nicholson, an attorney specializing in estate planning, elder law, special needs planning, and estate and trust administration, has volunteered his time for NCDSA over the years providing workshops and seminars to families of people with Down syndrome. Tony has taken a more active role since December 2020 when he joined the NCDSA Board of Directors and assumed the role of Treasurer and Chairperson of the Finance Committee. A native of Ohio, Tony calls Durham home where he lives with his wife and son. On the weekends, Tony enjoys cycling, boating and fishing, and supporting the local restaurant scene with his family.

Thank You Tony!

Want to make a difference at NCDSA - find out more...

Upcoming Social Activities

Advance Registration Required for all Events

Registro Noche de Mamas

Purchase your ticket for Alanis Morissette Concert

Keep up to date - check out the NCDSA Calendar

NCDSA exists due to the generosity of individuals and sponsors who share NCDSA's mission and vision for people with Down syndrome. Won't you join us as NCDSA works to improve the quality of life and healthcare outcomes for people with Down syndrome in North Carolina? Every donation makes a difference. You can make a difference.

Make a Donation