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October 16, 2024 | Issue 152 (View newsletter as webpage) Para leer este boletín en Español, haga clic aquí

Important News

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October is National Down Syndrome Awareness Month


The month of awareness started in the 1980s by the National Down Syndrome Society. The express goal was to spread awareness as well as greater understanding about Down syndrome and to promote advocacy and foster inclusion throughout the community.


It's about focusing on abilities rather than disabilities.


To learn more about Down Syndrome, including some simple truths and the fight for rights and services, click here.

Photo of Paul Aronsohn

Opinion: Words Matter. We Should Stop Using 'Rehabilitation' When Discussing Disabilities


Paul Aronsohn, New Jersey's Statewide Ombudsman for Individuals with Intellectual or Developmental disabilities and Their Families, recently published the following editorial on the USA TODAY Network:


"With October being National Disability Employment Awareness Month, now is a good time to start a national conversation regarding the concept of “rehabilitation” in the context of disability employment services.


Rehabilitation has long played a central role in the disability rights movement — one that stretches back more than a century and was originally focused on American veterans returning from war in Europe. Indeed, it was in 1918 that Congress adopted the Soldiers Rehabilitation Act, which provided federal assistance to help ensure honorably discharged veterans could be employed in civilian jobs. This was soon followed by the 1920 Civilian Vocational Rehabilitation Act, which extended employment-related support to non-veterans with disabilities.


The Rehabilitation Act of 1973 was another critical milestone in the disability rights journey. The law sought to build on the work done over the preceding half-century by prohibiting discrimination against people with disabilities in federal jobs or in organizations that receive federal funding.


...Taken together, it has been a good, largely constructive history. Many people with disabilities have been well served by it all. However, it is now time to take this important, century-long effort to the next level by actually phasing out the concept of rehabilitation as an approach to disability employment practices — changing the nomenclature to better align with an evolving, more enlightened view of people with disabilities."


To read Paul's full article, click here.

Resources

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New Housing Development Guide from the DDD


With the ongoing need for safe, affordable community-based housing options for New Jersey citizens with intellectual and developmental disabilities (IDD), the NJ Division of Developmental Disabilities (DDD) has released a new guide, Innovation in Housing: Developing HCBS Compliant Settings. This resource was developed to support innovation in housing and services that reflects an understanding of and compliance with the statutes and spirit of the Home and Community Based Services (HCBS) settings rule.

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Preparing for Emergencies: Planning and Partnerships with Families


In this Complex Care Journal Club podcast episode, Dr. Renee Turchi discusses an intervention study to improve emergency preparedness for families with children and youth with special health care needs. She describes the multiple community partners involved in intervention development, key insights gained while conducting the study, and next steps from this work. 


To listen to the podcast, click here.

Upcoming Events


SPAN offers a variety of learning opportunities for families and the professionals who work with them.


Highlighted Event This Week

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Family Engagement with the NJPTA


A NJ Family Engagement Hub Webinar

Tuesday, November 12, 11AM-12PM EDT Online


NJPTA is a network of families, students, teachers, administrators, business, and community leaders

devoted to the educational success of children and promoting family engagement in schools. NJFE Hub

and NJPTA are working together to promote intentional and planned engagement through this collaborative webinar.


Special guests:

Sharon Roseboro, NJPTA President

C. Andre Daniels, NJPTA Family Engagement Committee Chairman


To register, click here.


To learn more about the NJ Family Engagement Hub, click here.

See all of SPAN's upcoming events with details and registration links here 

Para recibir la edición en Español de este boletín semanalmente en su correo electrónico 

haga clic aquí para suscribirse
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Your Guide to Voting in NJ


Check out our latest youth blog post, "Your Guide to Voting In New Jersey," for step-by-step instructions on registering to vote and making your voice count in our democracy.


To access the post, click here.

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