THE LATEST FROM MACULAR DEGENERATION PARTNERSHIP
September 2018 AMD UPDATE
 
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Welcome Fall!

With the end of Summer, a new season begins.  Autumn brings shorter days and more time for indoor activities. This edition of AMD Update includes tips on diet and exercise and an innovative drug delivery system.  So sit back and learn more about AMD. 
Caretakers For Macular Degeneration

Do you have a family member who is living with AMD? We offer a few tips  on how to tackle macular degeneration together. 
Art and AMD

A recent, national exhibit displayed paintings of established artists who developed AMD, focusing on how their styles changed over time.  All the artists  learned to adapt their technique to their changing vision.  Read more about art and AMD here.  See some examples of the artwork from The Persistence of Vision exhibit by visiting here.  
AMD and the Generations

Q: Is your child or grandchild less likely to be diagnosed with AMD?  A: Possibly.
  
New evidence reveals that overall health and eye health are improving.  The chances of developing AMD are less likely for Baby Boomers than those born in the Greatest Generation. Click Here to read more.
An Orange A Day Keeps AMD Away

New research on diets had an unexpected result. An Australian study revealed an inverse relationship between oranges and AMD.  The group who ate the most oranges had a 57% reduced risk of early AMD.  Read here to find out how the orange is a new favorite among the fruits for AMD patients.
Exercising for Macular Degeneration

Scientists have found conflicting results when they interpret the relationship between exercise and AMD, although the health benefits of physical activity has long been established in other areas.  Does a lack of exercise bring on or accelerate AMD?  Or does vision loss resulting from AMD cause individuals to be more cautious about engaging in exercise?  Read more.   
CLINICAL TRIALS NEWS:
New Drug Delivery System for Wet AMD
Genentech, a biomedical company, has started Phase II clinical trials of an innovative drug delivery system that uses an implant the size of a rice grain filled with concentrated anti-VEGF medication.    Read here to learn more about the research and the future implications of this technology.
WEBSITES WE LOVE: 


Maxi-Aids, a company, based in New York, provides a wide range of products for those with special needs, including low vision.

What we love about their website, which displays their catalog of thousands of items, is the range of devices and aids that make life easier for those with AMD. They offer products as diverse as talking clocks to magnifier lamps.

In particular, we like the section on games and recreation. If it has been some time since you have played cards or a board game with friends or family, consider their giant dice, large letter Scrabble, Rummikub or bold, easy-to-read dominoes or playing cards. They even offer a large print game of Monopoly.

Check out their products as well as similar companies that sell products made for those with low vision.  You might find just what you need to make life a little more fun. 
Do you have an AMD-related question?

Send your question to contactus@amd.org.  Dr. Andrew Browne, M.D., Ph.D., retina specialist at the Gavin Herbert Eye Institute may provide an answer in our newsletter, AMD Update or one of our videotaped segments, AMD Information Bites, which you can find on our Facebook page. 

Q:  Do I still have to receive injections of anti-VEGF even if my AMD is no longer wet?
A: Once AMD becomes wet, it is  alway s wet AMD. It is more important to focus on the activity of the disease. In general, wet AMD is treated with intensive therapy (injections) until the disease becomes less active (swelling and leaking in the retina). As the disease becomes less active, the treatment becomes less intensive (fewer injections). Over time, the number of injections required to control the disease usually decreases and hopefully the disease becomes inactive. However, even if wet AMD becomes inactive, patients still require regular follow-up examinations by their doctor to ensure the disease remains inactive. If the disease becomes active again, then injection therapy is re-started.

For more information:
Go the the Macular Degeneration Partnership Facebook page to see more videos regarding AMD. 
Make a Difference 

Did you know that 100% of your donation to the UCI Foundation is used exclusively to support the Macular Degeneration Partnership? 

Use the blue DONATE button 
below to make an on-line gift. 

If you would like to mail your check payable to UCI Foundation, please send it to:
Macular Degeneration Partnership
850 Health Sciences Road
Irvine, CA 92697

Thank you for your generosity!  


Our Pledge . . .
 
Macular Degeneration Partnership seeks to provide comprehensive and easily understood information about living with AMD.   Visit Facebook for the most up-to-date information, email us at
contactus@amd.orgor call us at (888) 430-9898 if you have a question. 
 
Good health to you,
Mary Prudden, Program Director
Jay Santoso,  Community Health Specialist

Founded in 1998, the Macular Degeneration Partnership is a program of the Discovery Retina Center, 
Gavin Herbert Eye Institute,
University of California, Irvine.

888-430-9898 | www.amd.org | contactus@amd.org