Winter 2025 Newsletter

Happy New Year! We’re excited to kick off 2025 with updates and resources tailored for you, our incredible volunteers. From the launch of a brand-new Volunteer Resources webpage to opportunities for training, mentoring, and CCA Awareness Month activities, this year is already shaping up to be meaningful.


Thank you for your dedication to supporting the cholangiocarcinoma community. Together, we are making a difference—one connection at a time. 

New Volunteer Webpage

We’re excited to introduce a new CCF webpage just for you! The new Volunteer Resources page includes information about upcoming volunteer opportunities, training, resource links, and more! Check it out and let us know what you think!


This page is exclusively for volunteers and isn’t visible to the general public. Be sure to bookmark the address and check in often for updated content!

Visit our new Volunteer Webpage

Upcoming Training


Tuesday, January 28, 2025 @ 6:00 ET

Viewing of “Grief Talk: David Kessler on Listening” with group discussion afterward


Awareness Month Volunteer Opportunities


CCA Awareness Month is just one month away! We have seen great preparation involvement and would love to have you join in the efforts! For up-to-date information on Light It Green, proclamation requests, sharing your story, and much more, go to our new Awareness Month webpage

National Mentoring Month


January is National Mentoring Month, an opportunity to recognize the incredible influence of mentors in the cholangiocarcinoma community. By sharing your story, you can inspire others to make a difference. The Mentorship Matters flyer includes sample messages to help spread the word about the power of connection through CholangioConnect. We’ve also included suggested hashtags to enhance the visibility of our collective voice and other ways you can show your support. 

Volunteer Hours Reporting Reminder


Please submit all volunteer hours by January 13 to wrap up 2024 year-end details and prepare for award planning, including the President's Volunteer Service Award.

Mentor Spotlight

CCA survivor Jim Hoofnagle and legacy caregiver Erica Kerr were honored with Daily Point of Light Awards, highlighting their extraordinary contributions as CholangioConnect mentors making a difference for those navigating their journeys. 

Mentor Resources


CCF Patient Registry

CCF and Citizen Health created the following resources to help you help your mentees enroll in the Patient Registry to help advance treatment options for patients today and in the future and easily share their health records for second opinions and clinical trials. 



Talking to Kids about Cancer


Myth Busting 


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