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Supporting a Family's Autism Journey

April 2022

Zack is a four-year-old boy who loves going for walks, swimming, swinging at the playground and lighting up a room with his smile and contagious laugh. Zack was also born with a rare arteriovenous malformation in his brain called Vein of Galen Malformation (VOGM). At 18-months further testing revealed the vein had closed off and medically Zack was ok. However, VOGM also caused developmental delays which became noticeable. Zack's mom, Erin, shared "Zack did not walk until he was 22- months-old and his speech was months behind compared to his peers."


After Zack received early intervention services he started at Easterseals DuPage & Fox Valley. During this transition period, Erin shared, "We realized that more might be going on with Zack because he regressed in his speech, he began stimming often and he had trouble initiating and maintaining eye contact" Zack was evaluated at Easterseals Medical Diagnostic Clinic with Dr. Peter Smith and diagnosed with severe autism in July 2021.

 

Zack's new diagnosis brought clarity to the situation and helped ensure he received the resources and support he needed to flourish. Since Zack started his journey at Easterseals Erin has noticed real progress. "Zack has made big growth in his OT skills over the last one-and-a-half years! His fine motor skills along with his gross motor skills have improved. He now climbs all over the place and gets into EVERYTHING when before, he was hesitant to try new things and take risks. He is doing much better with making eye contact and coming to adults for help when he needs something."


Erin further explained how integrated support from Easterseals staff has made therapy more enjoyable and promoted success. "Our Easterseals therapists have been the best! They care about him and celebrate when he makes progress. They provide suggestions on what we can do at home to help reinforce what is done at therapy."

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"We have appreciated having Dr. Smith at Easterseals to provide Zack's initial autism diagnosis and to also check in with him and us every few months or so. His expertise on autism is evident and we take comfort in knowing that he is in our corner when it comes to parenting someone with autism."


- Zack's mom, Erin

Volunteer Appreciation Week

Thank You to our Volunteers!

We are so grateful to our dedicated volunteers who have continued to support Easterseals DuPage & Fox Valley. Over the past year we have seen a return of administrative, maintenance and event volunteers, along with corporate volunteers to help with summer landscaping at our Villa Park Center. We especially recognize:


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Our Board of Directors are a group of prestigious community and business leaders that are committed to ensuring that children with disabilities and their families are empowered. Their leadership and participation has been so valuable during the pandemic. We thank them for their time and dedication.

Upcoming Volunteer Opportunities

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Naper Nights: Guest Bartenders

Friday, July 15th 4:00 PM - 10:00 PM


Pour drinks alongside us at Naper Nights! A Summertime rock and pop music event right in Naperville's Naper Settlement!


Have fun while raising tips for Easterseals.

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7th Annual Bike for the Kids

Sunday, August 29th!


Join us for our annual bike ride starting at our Elgin Center. There are many opportunities for individuals and groups to cheer and support the cyclists and adapted bike recipients.

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19th Annual Run for the Kids: Superhero Hustle

Saturday, October 1!


A family favorite event! This superhero-themed 5K Run / 2-mile walk for all abilities features a post-party at our Villa Park Center. There are many opportunities for individuals and groups with set-up, tear-down, race support and party activities.

Ongoing Volunteer Opportunities

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We offer a range of individual and group volunteer

opportunities for all ages. Single day and recurring volunteer

projects are available. Do you have a talent or skill you can share?

  • Landscape Support
  • Playground Clean-Up
  • Administrative Support
  • Holiday activity for families (Easter Egg Hunt, Fall Fest, etc.)
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Create a pre-recorded or live video presentation for preschool or pre-K age children in our inclusive child care program:


  • Share a talent
  • Read a book
  • Play an instrument/sing a song
  • Lead a craft or experiment
  • Give a virtual tour of your workplace
Email Courtney to register or learn more about these opportunities!

Community News

Philly Baer Fundraiser

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In celebration of his 77th birthday, Alan Baer will be walking 77 miles over 7 days to support the Philly Baer Fund at Easterseals DuPage & Fox Valley. His walk kicks off this Saturday, April 23 and his fundraising effort has already surpassed his $7,777 goal!


The Philly Baer Foundation was established in memory of Alan’s grandson, Philly. Their objective is to improve the lives of children with special needs and their families by supporting medical research and providing access to healthcare and therapies. In 2020, the Foundation formed a partnership with Easterseals to create The Philly Baer Fund. This special fund provides financial assistance towards therapies for children with complex medical needs.


Thank you to the Philly Baer Foundation and the supporters who are helping to ensure children get the care they need! Show your support for Alan and join us in cheering him along next week.

Learn More or Donate

Community Celebration in Elgin


On Saturday, April 23rd from 1-4 PM join us at the 2nd Annual Heroes Unite Autism Acceptance Community Event in partnership with the Elgin Police Department! There are activities for the whole family including resource tables, petting zoo, a DJ, raffles, kids activities, safety and driver resources for families with autism. Thank you to The Autism Hero Project for putting this together for Autism Acceptance Month.

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Learn More

Project Dance GLOW!

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Mark your calendars for May 14th to join Project Dance Glow!


Project Dance Glow is a giant dance party led by St Charles North's Team Polaris to promote awareness and raise funds for local organizations like Easterseals that provide services for individuals with special needs. It is a safe space for those with sensory issues to be able to enjoy a large dancing scene without worries of overstimulation, and has something for everyone!

Learn More

We believe every child deserves to thrive in an inclusive community.

Donate

Follow and connect at @eastersealsdfvr

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