September 2018
Each month, we share our progress, next steps, and profiles of the people involved in the Global Partnership for Zero Leprosy. To learn more about the partnership, please visit our website .
Working Groups: Progress and Updates
Research Agenda Working Group
With an enthusiastic response to the open call, the group includes over 100 participants and reflects a wide range of expertise and geographic diversity. See the list of participants and sub-group areas.

A preparation meeting was held in Basel, Switzerland in August, and the report can be accessed here . Facilitators are forming meetings with sub-group participants now, and preliminary sub-group reports are expected by late October. A draft research agenda will be produced later in 2018.
Operational Excellence Working Group
A coordinating committee met in August to outline themes and criteria for the Operational Excellence Working Group. View the meeting report here .

With guidance from the leadership team, the secretariat is working on appointing facilitators and advisors for this group, particularly national programme managers and persons affected by leprosy. A meeting with facilitators and advisors is expected to take place in mid-October, with an open call for participants shortly after.

Next steps for 2019

This group will work closely with national programme managers to assess countries' opportunities, challenges and capacities to implement tools towards zero leprosy. Best practices and strategies from the Operational Excellence Working Group will be transformed into a Toolkit for National Capacity Building for Zero Leprosy. The toolkit is expected to be piloted in three countries in 2019. 
Meet Alice Cruz, UN Special Rapporteur
Alice Cruz
This month’s interview features Alice Cruz, the UN Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members. Her mandate includes reporting on progress made by UN states, engaging in dialogues with states, and raising awareness of the rights of persons affected by leprosy.

Alice speaks with Courtenay Dusenbury, Secretariat Director, about her charge as Special Rapporteur and how that can align with the partnership’s efforts. She highlights the link between discrimination and health outcomes, and the need to better understand the structural life conditions of persons affected by leprosy.


New Action Framework for NTDs
An initial review committee comprised of scientists, policymakers, national program advisors, WHO, and persons affected by leprosy met last week in Amsterdam to comment on a new Action Framework for Neglected Tropical Diseases (NTDs). Funded by the Uniting to Combat NTDs Support Centre and organized by the Netherlands Leprosy Relief, the meeting discussions were lively and yielded new insights for all participants.
 
Formerly known as the NTD Scorecard, the Action Framework is intended to assess global progress in 10 NTDs, including leprosy. The new Action Framework’s stated purpose is to “identify gaps, bottlenecks and collective actions and strengthen NTD partnerships through engaging on progress and gaps across 10 diseases with a uniform framework to facilitate cross-disease dialogue, learning and collective action…"
 
The framework will be further reviewed during an October meeting of representatives of all the NTDs and WHO, and a final version completed in December. 
Welcome New Members
A warm welcome to our new members! See the current list of partnership members. Membership is open to all who are committed to zero leprosy and the partnership principles.

Featured Resource: WHO Global Leprosy Update, 2017
Review the latest 2017 leprosy data and WHO’s strategies to reduce the disease burden in the Weekly Epidemiological Record, 31 August 2018, Vol. 93, No. 35.
Upcoming Events
NNN 2018
24-26 Sep 2018 | Addis Ababa, Ethiopia
The 9th NTD NGO Network (NNN) conference will take place at the United Nations Economic Commission for Africa Conference Center (ECACC) in Addis Ababa. A session titled “Strategies for National Capacity Building and Partnership in Leprosy Programs” will include brief presentations on the new WHO guidelines and preliminary results of the Global Partnership for Zero Leprosy working groups.

ILEP Meetings October 2018
9-12 Oct 2018 | Brussels, Belgium
The ILEP October meetings 2018 will be hosted by the Damien Foundation.

Leadership Team Meeting
11-12 Oct 2018 | Brussels, Belgium
The Global Partnership for Zero Leprosy’s leadership team will meet to discuss strategies and long-term milestones.

2018 COR-NTD Meeting
26 Oct - 27 Oct 2018 | New Orleans, Louisiana
This year's 2018 COR-NTD Meeting's theme is “Engage to Eliminate.” A discussion panel will present initial recommendations from the Research Agenda Working Group and seek input from the COR-NTD research community on its framework.


Our online calendar lists global leprosy events and meetings. Are you hosting a meeting related to leprosy? Let us know by completing the contact form .
Global Partnership for Zero Leproy | www.zeroleprosy.org