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July 2017    
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2017 NSDA Symposium Summary
Top left: Gwendolyn Sims Davis, Fred Hosier, Dennis Delgado, Jan Lant, Stephie Mendel, and David Barton. Top right: Group photos of Symposium attendees. Bottom Left: President Charlie Reavis presents Keynote Speaker Kevin Hancock with an award. Bottom center: Dr. Teresa Kimberley, SLP Melissa Kirby, Dr. C. Gaelyn Garret, Charlie Reavis, and Dr. Gerald Berke. Bottom right: Wendy Garrison shares her music at the Friday Welcome Party.

Over 100 people attended the 2017 NSDA Symposium in Nashville, TN, on Saturday, May 6, 2017. On Friday night, attendees were greeted by the bluesy sound of a slide guitar played by NSDA Support Group Leader Wendy Garrison. That was followed by the sharing of personal stories at the Welcome Party.  Saturday included presentations from SD medical experts, utilizing mindfulness as a tool, and several breakout sessions which focused on living with SD, the impact of SD on family and friends, and abductor SD. 

Watch Kevin's presentation
Keynote Speaker Kevin Hancock delivered an inspired talk sharing his experience of living with spasmodic dysphonia.
Kevin is the President of Hancock Lumber Company and was diagnosed with spasmodic dysphonia in 2010. Five years after, he published his book "Not for Sale: Finding Center in the Land of Crazy Horse" about his personal experience with SD  and how this  seeming liability turned out to be a blessing for him . Kevin sold copies of his book at the Symposium with the proceeds going to the NSDA. Kevin's book can be ordered here

Click here to read the Symposium summary, and be sure to view the presentations on the NSDA's YouTube channel at
www.youtube.com/user/NSDA300. Special thanks to NSDA volunteer Andy Harness for recording the meeting! 
The NSDA Board welcomes Warren Bandel
We are excited to welcome Warren Bandel to the NSDA Board. Having lived with spasmodic dysphonia since he was in 6th grade, Warren is dedicated to the Mission of the NSDA. He has served as an Area Contact Person since the mid-90s. In 2011, Warren attended his first NSDA Symposium and Leadership Day in Orlando, FL. Inspired by the personal stories and the positive experience, Warren's motivation to do more grew. Then in 2015, Warren organized his first NSDA Benefit Concert in Rochester, MN. This annual event has continued to grow and even travel, with a concert in Mankato, MN. Warren hopes to expand fund-raising for the organization in his new role on the Board. Click here to read more about Warren.
Stephie at her birthday celebration. 
Top row: Derron Mendel, Holly Mendel, 
Jeanne Samuelson, and Rona Hokanson 
Bottom row: Doug Mendel, Stephie Mendel, 
and David Mendel 
A Very Special Birthday Gift
We are so thankful to share in the birthday celebration of NSDA Board Member,
Stephie Mendel. Organized by her sons, David and Doug, donations in honor of her birthday were made to the NSDA, and she received the "gift" at a family party. She was overwhelmed by the number of people who contributed. Over  $37,000 for NSDA research was donated from over 25 families plus Sophie (her adorable dog).  To say she was touched is an understatement. "There is not a gift I would have rather received. I was just stunned. I appreciate my family so much and am so proud of my sons," shared Stephie. We appreciate the generous support! 
SD Career Corner
Professionally, Dorothy Tannahill-Moran  (right) is known as the "Introvert Whisperer," helps people to find career success by providing unique, actionable career advice. Dorothy also has had spasmodic dysphonia for about 20 years, first noticing it when she was making a presentation to her CEO. "I wasn't nervous but my voice had a definite "warble" to it. It took another seven years for it to get to the point where I knew something was wrong. I guess I'm lucky and grateful that it never occurred to me to do anything differently because of my SD. I have viewed it as just another challenge life has thrown my way but I do acknowledge that for many people with SD, it is a life-altering journey." Dorothy shares her professional advice but with a twist of her personal understanding of having spasmodic dysphonia. Click here to read her article, " When Your Voice Creates a Roadblock to your Career; Find Another Path."
Personal Profile: Dr. Gary Lea
Dr. Gary Lea (left), a clinical psychologist, wrote about his personal experience with spasmodic dysphonia including treatment with botulinum toxin (Botox®) injections and his decision to have the SLAD-R (Selective Laryngeal Adductor Denervation-Reinnervation) procedure in 2007. He shared, " My counselling clients would, at times, question my vocal spasms, and I would explain that I had a voice disorder, and that it was neither painful nor infectious. My clients seemed to find that explanation acceptable, it never became a " big deal ", and I do not believe that I lost any clients because of it. On the contrary, I was able to draw parallels between my own voice problems and their psychological or medical difficulties, as a way of demonstrating that all of us, sooner or later, are given challenges in our lives that can either defeat us or provide opportunities for self-improvement." Read his full story by clicking here.
In Memoriam: Lylia Bennett
Sadly, the NSDA lost a dear friend with the passing of Lylia Bennett  (right) of Sweetwater, TX. Lylia served on the NSDA Board for many years. During her Board years, she served as Vice President and as a member of the NSDA Board's Communications and Support Committees. In addition, she represented the NSDA at various medical and speech conventions. Lylia had a caring heart and was always graceful and professional. She will be dearly missed.
SD Awareness Tools Available
Click here to order today!

Buttons:  This button is a creative way to let others know about spasmodic dysphonia. It measures 1.75" x 2.75" and was designed by Andrea Butteworth who has SD. Andrea shared that the goal of these buttons is to help many feel more confident and open the door for conversations about SD. Read Andrea's story by clicking here .

Business Card:  Explaining that you have a voice disorder can help make a situation less stressful. Three business size cards provide an easy way to explain to others about spasmodic dysphonia and raise awareness.

Car Visor Card:  This visor card (5.5" x 8.5") will help explain what spasmodic dysphonia is, especially in stressful situations. Keep one in your car!
Shop on Amazon? 
You shop and then Amazon gives to the NSDA. Use this special link to support the NSDA:  http://smile.amazon.com/ch/38-2918042
The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
 7/29 - Austin Spasmodic Dysphonia Support Group

 8/10 - The SD Support Group of Charlotte, NC
 9/09 - Oakland Spasmodic Dysphonia Support Group
 9/11 - Spasmodic Dysphonia Support Group of Philadelphia
 9/16 - Dystonia Support and Advocacy Group of San Diego
 9/19 - Central Oregon Dystonia/SD Support Group
Click here for a full listing of upcoming meetings and more details!