SRF’s annual signature event is going virtual again following the success of our first-ever YouTube broadcast last year. And, it’ll be better than ever before, with a new line up of world class comedians and musicians, pre-show bonus content, Watch Party toolkits to help you celebrate, and more.
Your hosts for the evening? SRF Board Members Bob Saget and Susan Feniger, of course! The date and time? Sunday, October 17th, 2021 at 8 pm ET/ 5 pm PT. All funds raised through Cool Comedy • Hot Cuisine directly support the SRF’s research programs. Become a sponsor today, and help us end scleroderma.
(Sponsor registration is open now; individual viewing tickets will be available in September.)
|
|
"I love this picture of us,” says Sharon Dobie, looking at a photo of her and her son Matt out on the water on a beautiful day. Sharon joined the SRF board after losing her son to complications from scleroderma.
The SRF’s Annual Research Challenge highlights the Multi-omics Profiling of Interstitial Lung Disease in Systemic Sclerosis project. She says, “This Challenge is really important to me, because Matt’s worst part of his condition was scleroderma-associated interstitial lung disease.”
Learn more about why she's inspired by the unique nature of this research.
|
|
Research Challenge Extended |
|
Inspired by your response, the 2021 Research Challenge has been extended through August 15th. It's not too late to help reach our goal of raising $120,000—funds that will directly support research aimed at improved treatments and, ultimately, a cure for scleroderma.
Please make a gift today and help drive science forward!
|
|
New SRF-Funded Research Uses Unprecedented Way to Examine Fibrotic Tissue |
|
We're excited to announce a new SRF-funded research study: Establishing a Spatially– Integrated Transcriptomic, Epigenomic, and Histologic Signature of Fibrosis in Systemic Sclerosis, lead by Michael Longaker, MD and Howard Chang, MD, PhD from Stanford University School of Medicine.
This project presents a new way to examine fibrotic tissues that is unprecedented in its scale and depth. It will give researchers new insights into fibrosis and the potential therapies that can reduce this burden for patients.
|
|
New Blog Post from 23andMe Featuring the SRF |
|
We're excited to share a new blog post from 23andMe, featuring Gloria Blecha, the SRF's Director of Community Engagement. She sat down virtually with 23andMe to discuss scleroderma research and why study participation matters.
As our point person to the scleroderma community, Gloria shares her perspective on why we need awareness. Additionally, she shares how the SRF continues to advance scleroderma research.
Read the post to learn more about why we're working with 23andMe to drive science forward.
|
|
Study Finds that Skin Fibrosis is Worse When the Lungs Are Involved |
|
"Scleroderma involving the lungs is associated with a greater degree of skin scarring, or fibrosis, according to a new research model that seeks to predict a person’s risk of organ-specific complications involved in that disorder...
Overall, individuals with lungs affected by scleroderma showed greater degrees of skin fibrosis, whereas the investigators found no such relationship for the heart, kidneys, or esophagus. Kidney involvement, however, did correlate with older age." - Scleroderma News
|
|
Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. |
|
Creative Ways to Raise Awareness, from Yoga to Scrunchies |
|
During June, Scleroderma Awareness Month, Cure Crew members around the country were inspired by loved ones with scleroderma to make a difference. Read about how Sarah, Beth, and Jamie channeled their personal strengths into spreading awareness and raising funds. |
|
We celebrate our Cure Crew members and the impact they make. They come together with the shared belief in the power of research to help people living with scleroderma and, ultimately, find a cure.
Visit the SRF Cure Crew webpage to learn more, and tell us how you will be a partner!
|
|
|
|
|
|
|
