pALS News
December 5, 2019
Spotlight
In light of the Holiday Season,
there have been some changes to the Support Group Meeting Schedule.

Please visit the link below for more information.
Care Services
The Care Services staff provides free comprehensive programs and services to families living with ALS. 
Multidisciplinary Clinics
Support Groups for Patients and Caregivers
Augmentative Speech Communication Device Program
Get Smart Program
In-Home Evaluations
PALS 4 life Grant Programs
ALS Referrals and Resource Center
Durable Medical Equipment Loan Program.
Loan Closet Feature
Fire TV Cube
The ALS Association Greater Sacramento Chapter's durable medical
equipment loan program is a coordinated effort to provide needed equipment and augmentative devices to people with ALS. 

The loan closet is designed to provide DME that insurance does not cover or while permanent equipment is on order from the insurance company or alternate funding source.
Support Group Meetings
We all need support during certain stages of our lives in order to cope with difficult situations. For people with ALS and their families, a diagnosis of ALS is a devastatingly stressful life event. A support group provides a helpful setting in which you, your family and your caregiver can obtain and digest reliable information, find a supportive network of people in similar circumstances, and a context in which to share your experience, fears, concerns, and hopes. A support group can provide a reminder that you are not alone, and there is hope for a good quality of life.   
Placer County Support Group Meeting
Thursday, December 5, 2019
11:30am-12:30pm
at The Roseville Executive Suites
1100 Melody Lane, Roseville CA
This monthly group is open to anyone whose life’s been touched by ALS.

Chico Support Group Meeting
Thursday, December 12
12:00pm-2:00pm
at Enloe Home care 1390 E. Lassen Ave., Chico, CA 95973

(Please ask the receptionist at the lobby desk for directions to the correct room). This monthly drop-in group is open to anyone whose life has been touched by ALS. Complimentary Lunch will be provided
Upcoming ALS Multidisciplinary Clinics
UC Davis ALS Multidisciplinary Clinic-- Friday, December 6
The location of the multidisciplinary clinic is 4860 Y Street, Ste.0100, Sacramento 95817. There is parking for $2 (with validation) in the adjoining parking structure. If you have any questions about your appointment, please email  nwakfield@alssac.org 

Kaiser ALS Multidisciplinary Clinic - -Wed., December 18
The location of the clinic is 2025 Morse Avenue, Sacramento, CA 95825.  For questions, please contact  nrichards@alssac.org
 
Forbes Norris ALS Multidisciplinary Clinic
Thursday, December 19
Please note, the location of the Forbes Norris clinic is 1315 Alhambra Boulevard, Suite 210, Sacramento. There is validated parking in the attached parking structure, but you may want to drop off pALS in wheelchairs at the front of the building, as wheelchair accessibility is only available at the front entrance.
Multidisciplinary clinics utilize a team of health care professionals who focus their care on ALS. Typically, patients are seen by a neurologist; respiratory, occupational, physical, and speech therapists; registered dietitians, durable medical equipment specialists, and a member of the ALS Association team … all in one appointment. Patients benefit from a coordinated team approach to their care. If you are not currently participating in a multidisciplinary clinic and would like to, give our office a call at (916) 979-9265 or email at nwakefield@alssac.org  
Research & Clinical Trials
ALS Clinical Trial Pipeline Series - Winter 2019

Jeremy Shefner, M.D., Ph.D., FAAN, Barrow Neurological Institute
Thursday, December 12, 2019 at 11:00 11:00 a.m.

Dr. Jeremy Shefner will review the ALS clinical trial pipeline and answer questions about the current state of clinical research.

Clinical Trials
Please visit our ALS Research Portal, and Clinical Trial Information on The ALS Greater Sacramento Webpage.
Webinars
Power Wheel Chairs: Critical Components and Accessories to Enhance and Prolong Function
Wade Lucas, PT, DPT, ATP/SMS
Monday, December 16, 2019
11:00 a.m

Complex power wheelchairs are custom designed for maximum benefit of the user. Wade Lucas, PT, DPT, ATP/SMS, Clinical Education Manager, Western US with Quantum Rehab shares the benefits of various PWC features.

Click Here to view a list of archived webinar recordings from the ALS Association Greater Sacramento Chapter .
Resources
New ALS Medicare Resource Line
The ALS Medicare Resource Line is designed to provide individualized case management assistance for those diagnosed with ALS, their family members, and caregivers. It is a free service that gives you direct phone access to Medicare experts.

It provides assistance with navigating eligibility and enrollment in disability benefits and overcoming insurance coverage and financial burdens that impact your access to care.
Options For Communicating Your Medical Needs
In The Event Of An Emergency
Living with ALS not only impacts a person’s daily life, but also what to do in an emergency situation or hospital stay. When providing care, health professionals and emergency personnel, like paramedics, will have many questions about a person’s medical condition. In these stressful situations, it is often helpful to have an organized set of information, which can help inform medical providers about specific issues and considerations. To request one from the chapter call (916) 979-9265.
ALS Medical Alert Wristbands:

It’s important for emergency medical personnel to know that you have ALS, but sometimes this information doesn’t get communicated, or, more often, medical professionals may not be familiar with ALS and may not be aware of information important to your care. The Greater Sacramento ALS Chapter has created wrist bands that direct them to a website where they can get important information about caring for an ALS patient.
 
Contact the chapter office to ask for a wristband today! (916)979-9265 or email nwakefield@alssac.org
Key Medical Information Mobile App:  

The Key Medical Information app provides medical personnel with critical information to care for a person with ALS (amyotrophic lateral sclerosis) during an emergency. In addition to medical dos and don’ts, the app provides a communication board and emergency contact fields for users to reference. The app is available in Google Play and the Apple Store and is searchable by “Key medical Information” or “The ALS Association”. 
Care Connection: A Way to Help Your Family 
The impact of an ALS diagnosis is profound – and not just for the person living with the disease. Daily activities, like making meals, doing laundry, mowing the lawn, and walking the dog, take a back seat when providing care for a family member with ALS. Caregivers can feel defeated by the growing list of tasks they are no longer able to manage. Yet, it can be hard to know when and how to ask family members, friends, and neighbors for help. In the same vein, it can be difficult for those who want to lend a helping hand to know just what is needed and how to make a difference. Our ALS Care Connection program was created to help.
Take Action
ALS advocates lead the fight to defeat ALS on the frontlines. You can lead us closer to a world without ALS by joining the dedicated network of ALS advocates nation-wide. As an ALS advocate, you can help change the laws and policies that affect thousands of people living with ALS and their families. Sign-up to be an ALS Association Advocate and you will receive important updates and action alerts on the latest advocacy issues. Help us continue to light the way for a treatment and cure for ALS. 
The National ALS Registry was created and is designed to identify ALS cases from throughout the entire United States. The registry is collecting crucial information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated and prevented.
Every time you shop on Amazon, a portion of your purchase will be donated to the ALS Association, Greater Sacramento Chapter. Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases to ALS Association, Greater Sacramento whenever you shop on AmazonSmile. Just choose ALS Association, Greater Sacramento Chapter when prompted to choose a charity through the Amazon Smile program! 
Thank You to our Chapter Sponsors!
We look forward to seeing you at a Support Group Meeting or one of our events. Please reach out if you have any questions, or concerns.

Warmly,

The Care Services Team