Annual Family Conference in Niagara Falls, Canada

Our annual family conference is right around the corner! If you are attending:

• Reduced-cost stipend registration and the special first-time family pricing will close on June 13 at midnight CT.
• All conference registration will close on June 27 at midnight CT

Flying into Toronto for conference? Families can use Niagara Air Bus who want a ride to the hotel. Use the discount code 811 and learn more HERE.

Flying into Buffalo for conference? Families can use Buffalo Airport Transportation who want a ride to the hotel.

Register for conference HERE

Starfish Dinner and Dance Tables

The 2025 conference in Niagara Falls, Canada in July will be here soon and you can reserve a family or corporate table at the Starfish Dinner and Dance! Raise or sponsor at least $1500 USD and you will be able to pick your choice of table (that seats 8-10 people) in the ballroom for the Starfish Dinner & Dance on July 16th! This sponsorship allows you to invite guests to join you at no additional costs. Get your table HERE!

June 18: 18p- Awareness Day!

June 18: Facebook Live with Alice Polley - Live at 6pm CT

June 19: Parent Support/Connection Group for Parents with Young Children - Zoom Call at 7pm CT

June 30: Self-Advocate Game Night - Zoom Call at 7pm CT

August 1-18: Power of 18 Challenge!

Every month, Chromosome 18 goes live on Facebook! Watch May's Facebook live with Jess Ronne, the featured family in the documentary "UNSEEN" that will be showing at conference! WATCH HERE

2024 Annual Report

We deeply appreciate the incredible support you provided in 2024. Thank you for the generous donations and the relentless fundraising efforts of our donors and their families, we achieved remarkable milestones this year. We are truly grateful! 

View the full list of generous donors HERE

Read the Annual Report HERE

Golf Tournament

Chromosome 18 is excited to host the 21st Annual Golf Tournament on October 10th, 2025 at Canyon Springs Golf Club! Join us for a fun-filled day of golfing in support of our chromosome 18 children and families. Play 18 holes at the beautiful Canyon Springs Golf Club in San Antonio, TX. The night before on October 9th, join us for the Starfish Soiree at Oak Hills Country Club. The reception will feature specialty cocktails, hors d’oeuvres, wine pull, and silent and live auction. Included in your registration for the Tournament is admission for you and one guest to attend the Soiree. Registration is now open! Register HERE

Mission Moment: Alice Polley

This upcoming month, we get the chance to hear from Chromosome 18 grandparent and author Alice Polley. Alice wrote the book, "The Great Gram" in honor of her grandson pictured above. Alice's book profits are 100% donated back to the Registry.

Learn more about her book HERE

Watch Alice's Facebook live on June 18th HERE