Natalie Brobin's recent death has the TS community grieving. She not only impacted the community as a whole, but she also left hundreds of TS close friends missing her.
After Natalie's daughter was finally diagnosed with TS, she passionately and tirelessly found ways to make the lives of those with TS easier. She was somewhat of a "mom" to the moms by offering advice, a shoulder, and leading the way to learn more.
Highlights of Natalie's Contributions to Turner Syndrome
Mystery Diagnosis Episode about her struggle to find a diagnosis for her daughter, Nicole.
Authored and published a booklet called Coley's Story to help young girls with TS experience the needs of TS healthcare through the eyes of a 4-year-old. She was in the midst of updating the 20-year-old booklet.
Authored and published Everyday Self-Care: and Your High-Needs Child her most recent accomplishment to help parents prioritize their own needs. "
Written in concise chapters, and drawing from the experience of other parents as well as the input of doctors, this book is the informed, experienced life coach in your pocket that every parent of a special needs child can use."
Heart research- she helped coordinate the Healthy Heart Study, was a committee member of the Thoracic Aortic Dissection Coalition, and worked to advance heart research for over a decade. She helped researchers remember that those with TS need quality of life and deserve to be an integral part of the research process.
In 2007 Natalie coordinated the TSSUS Annual Conference in Minnesota by herself. As TSSUS struggled, Natalie ensured people had an excellent conference to attend.
Marketing Coordinator of TSSUS.
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Butterfly image Logo- she was instrumental in helping create the butterfly image.
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Positive Exposure integration; Natalie wanted to ensure people with TS were viewed as beautifully different and respected.
TSSUS Board Member and long-time volunteer who responded to countless phone calls and emails.
Our sincere condolences go out to Natalie's family and close friends. We will post further news on the TSSUS FB page.
