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Pregnancy and the postpartum period bring significant changes to the body, but for individuals living with lymphedema or lipedema, these changes are not well understood. Current research and clinical guidance are extremely limited, leaving both patients and healthcare providers without clear answers on how to safely manage swelling, symptoms, and treatment during this critical time.
This international research initiative was designed to close that gap. Through a series of studies, including literature reviews, clinician focus groups, case experiences, and healthcare provider surveys, this research group has identified meaningful concerns: potential worsening of swelling, uncertainty about treatment approaches such as compression and manual lymphatic drainage, and a widespread need for better education and guidance for healthcare providers.
Now, this final survey focuses on what matters most: the individual’s experience. By sharing real-world experiences during pregnancy and postpartum, participants will help shape future care, improve clinical education, and support the development of evidence-based guidelines. Ultimately, this work aims to empower patients and healthcare providers worldwide with the knowledge needed to make safer, more informed decisions during pregnancy and beyond.
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