LFA, WI Chapter Newsletter

May 1, 2024

Raising Lupus Awareness

Thank you to Wisconsin Governor Tony Evers for proclaiming May to be Lupus Awareness Month in Wisconsin, and to Milwaukee Mayor Cavalier Johnson, who proclaimed Friday, May 10 to be Put On Purple Day in Milwaukee!


To celebrate, make sure you wear purple on Friday, May 10, and tell people why. That day is also World Lupus Day, so by raising awareness of lupus, you're part of a worldwide movement to increase lupus visibility.

Today is the Big Day!

Winners of the Chance for a Cure cash raffle will be drawn today at the LFA, WI Chapter office.


Winners will be notified by phone following the drawing. Thank you to everyone who bought and sold tickets for this important annual fundraiser. The money raised through raffle ticket sales allows us to continue to provide resources and support services to lupus warriors throughout Wisconsin. We couldn't do it without your efforts!

Buy Candles, Support LFA, WI Chapter!

Are You Ready To Walk?

Make sure you pre-register by Wednesday, May 8 to guarantee your 2024 Walk to End Lupus Now - Milwaukee t-shirt and discounted admission cost!


Event day registration opens at Hoyt Park on walk day at 8am, and adult registration prices increase to $35. Walk shirts are only guaranteed for pre-registered walkers; extra shirts are available to event day registrants while supplies last.

EXCITING NEWS!!


A generous donor has stepped up to MATCH Walk to End Lupus Now - Milwaukee donations up to $20,000!


Maximize the impact of your donation today!

The Walk to End Lupus Now - Milwaukee will take place on


Saturday, May 11 at Hoyt Park in Wauwatosa


Join us for a morning of celebration, raising lupus awareness, and showing our power against lupus.


Register as a Team Captain, team member, individual walker, or show your support with a donation.


We are still looking for volunteers along the walk route. If you are available to volunteer or know any individuals or groups who could volunteer for a couple hours during the walk, please email Dawn at dawn@lupuswi.org.


Route monitors are stationed along the walk route to keep participants on the correct path. This position can be done by anyone - there is no lifting required, you can be seated if you have limited mobility, and it's great for people of all ages: last year we had a fantastic Girl Scout troop cheering people on.

Current Walk Teams:

Lupus Royalty (Captain Pam Hawes-Berg) - Jen's Team (Captain Jen Barlow) - Sarah's Joy Chapter #8, OES (Captain Adrienne Brown) - Holy Walkamolies (Captain Alisa Sanchez) - Cheryl's Flare Fighters (Captain Cheryl Plestina) - Walk This Way (Captain Michelle Jendrzejek) - Team Kosmach (Captain Elizabeth Kosmach) - The Ladies in the Purple Hats (Captain Amira Young) - OppsNoLoops (Captain Vallery Jackson) - Jennie's Legacy (Captains Lizeth Romero & Alissa Brunner) - Prince's Purple Crew (Captain Dana Wilson) - Wiggle Rheum (Captain Dr. Dave Gazeley) - Warriors for CJ (Captain CJ Holloway) - MsJsonflwrs (Captain J.F. Marin) - Purple Power (Captain Nicole Haug) - Jean's Striders (Captain Danielle Romain Dagenhardt) - Mae and Taliyah (Captain Taliyah Bounds) - Lil Lupie (Captain Kelsey Tessman) - Honoring Ellie (Captain Adina Parker-Sharafinski) - Pam's Peeps (Captain Pam Ziebell) - Anney's Angels (Captain Anne Nuval) - Kathy's Krew (Captain Kathy Andrews) - Lupita Warriors (Captain Tanisha Cargile) - Butterflies of Faith (Captain LaHelen Baldwin) - Danno's Wolfpack (Captain Dan Gerlach) - Team Leah (Captain Jean Lau) - Autoimmunity Cuties (Captain Sakuri Fears) - Sista's (Captain Angela Keith) - Walking Soldiers (Captain Anita Nash) - Black Butterflies (Captains Latish Reed & Latasha Dawson) - Team Ontech (Captain David Hahne) - Helen Wheels 2024 LPLGTO (Captain Julie Schultz) - Miles for Eiles (Captain Sarah Eiles) - Kathy's Averngers (Captain Luanne Burg) - KimbeeYoung (Captain Kimberly Young) - Infinite Mint (Captain John Toth) - Jessica's Purple Wings (Captain Jessica Lucas)


If you are interested in being a Team Captain, or are one and would like this year's Team Captain Packet sent to you, let us know at angie@lupuswi.org.

Walk Day Team Signs

Team Captains with 4 or more pre-registered team members receive a team sign on walk day.


These signs can be decorated at the Decoration Station tent, and are a great way to celebrate your team in photos and along the route.


The Lupus Medical Symposium

Register and get more info here

Learn What you Need to Transition to Adult Lupus Care

This year's Rheum to Grow Lupus & Family Workshop takes place at the Milwaukee Public Museum on Saturday, October 19, 2024. Pediatric lupus warriors and their families are invited to this FREE event, where they will learn information and resources to ease the transition to adult medical care. Following the workshop, attendees receive free admission to the Museum.


This workshop is developed and run by LFA, WI Chapter and medical professionals from Froedtert & the Medical College of Wisconsin, Children's Wisconsin, UW-Health American Family Children's Hospital Madison, and UW-Heath Department of Rheumatology.


Register and Info

2024 Calendar - Save the Dates!

Door County Candle Company Fundraiser - Wednesday, May 1 - Saturday, June 15

Walk to End Lupus Now - Milwaukee - Saturday, May 11, 10:00am. Hoyt Park, Wauwatosa

Lupus Lectureship - May (details TBD)

Lupus Medical Symposium - Thursday, May 30, 5-6pm, Froedtert Hospital Milwaukee

Links4Lupus Golf Outing Fundraiser - Saturday, June 15. Winneconne

Walk to End Lupus Now - Milwaukee Wrap-up - Monday, June 24 (details TBD)

Tee Up Fore Lupus Golf Outing Fundraiser - Saturday, July 20, noon. Waterford

Drive Out Lupus Golf Outing Fundraiser - Tuesday, August 6. Richfield

Lupus & Kidney Disease Educational Event - Tuesday, August 13. Milwaukee

Walk to End Lupus Now - Madison - Saturday, September 28, 10:00am. Middleton

Rheum to Grow Lupus & Family Workshop - Sat, October 19, 10:30am, Milwaukee Public Museum

Lupus Community Group Leader Summit - Friday-Saturday, November 1-2. Green Lake

Nothing is as Strong as the Heart of a Volunteer


LFA, WI Chapter relies on volunteers to make our many programs and events possible. If you are interested in volunteer opportunities with LFA, WI Chapter, please click here to fill out our volunteer application form.


We are in the process of revamping our volunteer database, so please take the time to fill out the new online volunteer application even if you have volunteered or filled out our paper form in the past.


It is because of our volunteers that our mission is possible. We appreciate every one of you who have leant their time and talents to improve the lives of all people affected by lupus.


LFA, WI Chapter Volunteer Application Form

Upcoming LFA, WI Chapter Community Group Meetings

 

Community Group Speaker Spotlight

 
 

To highlight the diversity and camaraderie shared in these groups, we have changed their name from "support groups" to "community groups." Nothing else about these groups has changed; they are still safe, encouraging places to confidentially share, learn, and receive support from others in your lupus community.


Find a list of all Community Groups and upcoming meetings on our website.

If you are interested in starting a lupus support group in your area, please let us know.


**unless indicated below, all LFA, WI Chapter community groups will continue to meet virtually via zoom.

 

Fox Valley Area Community Group


Monday, May 6, 6:30pm

Via Zoom

Email FoxValleyAreaSG@gmail.com for meeting link & information

 

Madison Area Community Group



Wednesday, May 15th, 6:30pm

Via Zoom

Lupus Focus*

Topics: Caring & Sharing

RSVP Required

Email volunteer Nancy Johnson at suldalwi@gmail.com for meeting link & information


*This group covers both lupus and Sjogren's, alternating the focus of each monthly meeting between lupus- and Sjogren's-centric topics. All meetings are of course open to all with an interest in the topics covered.

 

Milwaukee Community Group


Tuesday, May 28th, 5:30pm

Tentatively in-person

Email Betsey Woody at betsey@lupuswi.org for information

 

Men's Community Group: One-On-One Support


Contact our office by email or at (414) 443-6400 for Men's Support Group contact information. This group meets as requested.

 
 
 
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