Hope For Hypothalamic Hamartomas - August 2025

International HH Awareness Month

September is International Hypothalamic Hamartoma (HH) Awareness Month!

We cannot stress how critical YOU are in our mission and the huge IMPACT your efforts have on improving the lives of those living daily with this rare syndrome.

We need our Hope for HH community to rally together and take action to raise the funds necessary for us to continue our research grants, research symposiums, seizure detection device grants and other patient support programs. We are excited to include fundraising for our 2026 Patient Conference (more information to follow).

September is our collective opportunity to focus all efforts in raising HH awareness and encourage our individual families, communities and beyond to help us. Through these donations Hope for HH will be able to continue our fight to improve the lives of those with HH Syndrome.

Our goal for September is to raise $25,000.

We are asking each of our community members to either make a direct donation or create a TEAM Member page through our GiveButter fundraiser to help us meet our goal.

Spread Awareness on your Social Media

Help spread awareness by updating your Facebook cover photo and profile photo with these customizable templates.

How to customize templates:

• Select images below to open each template in Canva (free online tool)
• Click the button below it to “Use template for a new design“
• Personalize the template with your photo
• Download the image
• Upload image to Facebook

48 Hour Promo On Select Items

Exciting news as we prepare for the 2025 International HH Awareness Month kickoff! We have a special 48-hour promo code "HHAWARENESS16" for 15% off select items at our Bonfire store.

This is a great opportunity to grab some gear for yourself or shop for a loved one. Place orders in the next 48 hours to ensure you get this discount.