February 2025 PKD e-News

Welcome to the February e-News from the PKD Foundation of Canada! This month we have information on the launch of our new online community, My PKD, our upcoming webinar on medical trauma & PKD, Rare Disease Day, and more!

Our brand-new, private online PKD community, My PKD, is now live! Connect with others who understand your journey, access valuable resources, and be the first to hear about upcoming events.

This is your space to share experiences, ask questions, and find support from people who truly get it. Join today and start building meaningful connections in a safe and supportive environment. 

Planning for this year's Walk to END PKD events is already underway. The Walk to END PKD relies on amazing volunteers like you!

Whether helping behind the scenes or supporting walkers, your time makes a difference. Sign up today!

On Feb 28, raise awareness for 300 million people worldwide living with a rare disease. (ARPKD is one of those rare diseases!) Help spread the word!

This month’s Voices of PKD features Nasrin, whose son Damon has ARPKD. She shares how connecting with the PKD community gave her family hope and strength.

Medical trauma can be part of the PKD experience. Therapist Joy Pekar will share strategies that can help with medical trauma.

Tue 25 Feb @ 12 noon EST

For the first time, KDIGO has released an official ADPKD guideline. Join Dr. Lanktree and PKD patient partner Henry Osei-Agyekum to learn what this means for patients.

Wed 26 Mar @ 7pm EDT

Read the KDIGO guideline

Simple dietary changes can support kidney health and improve well-being. Read this month's blog for easy, practical nutrition tips tailored for PKD patients.

This month's kidney nutrition blog comes with a bonus - a downloadable PDF created by registered dietician and certified diabetes educator Emily Campbell to help with meal planning and choosing portions.

This resource is available exclusively for My PKD members - join today to have resources like this at your fingertips.

Join My PKD today

Working for a cure,

Your friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.

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