Weekly News

 

September 2 | 2026

From Genes to Guidelines to Bedside: Personalized Management of Pediatric Juvenile Polyposis Syndrome

September 30, 2026, 8PM ET


Juvenile Polyposis Syndrome (JPS) is a rare, inherited gastrointestinal polyposis syndrome with significant variability in clinical presentation and associated risks. As research continues to identify important genotype–phenotype correlations, a more personalized approach to surveillance and management is emerging.

 

Join us for this live webinar that will examine how evolving evidence can inform the care of children with JPS.

 

Experts will explore the distinction between sporadic and syndromic juvenile polyps, foundational guidelines for JPS management, genotype-specific surveillance considerations, and evolving approaches to polypectomy and chemoprevention.

 

Join moderator Claudia Phen, MD, and featured speakers Thomas Attard, MD and Suzanne MacFarland, MD as they bring their expertise in pediatric polyposis, cancer predisposition, and gastroenterology to this important discussion..


Register today!

Call for Volunteers: Faltering Weight Micro-Volunteer Working Group


NASPGHAN and CPNP are seeking six volunteer members to serve on the Faltering Weight Micro-Volunteer Working Group, part of the educational initiative entitled: Faltering Weight Explained: A Masterclass in Diagnosis, Management and Treatment, supported by Nutricia. 

 

This expert working group will develop and review educational resources that support implementation of the recent AAP/NASPGHAN Joint Clinical Practice Guideline for the diagnosis and management of faltering weight. Working Group members will help ensure the materials reflect current evidence, clinical guidance, and practical, real-world messaging for a multidisciplinary audience. 

 

We invite applications from qualified healthcare professionals, including pediatric gastroenterologists, hepatologists, dietitians, advanced practice providers, and others with expertise in faltering weight, growth assessment, or pediatric nutrition. 

 

Details at a glance: 

 

• Positions available: Six (6) NASPGHAN and CPNP members 

• Meeting format: Virtual 

• Estimated commitment: Approximately 10–15 hours

• Project duration: 2026–2027 

• Application deadline: September 14th  

 

We encourage all interested members to apply and help shape this important educational initiative!

 

Questions or concerns may be directed to NASPGHAN Project Manager Samiya Green.

Funding Patch Puts OMB Grant Rule on Hold

 

Yesterday, the House voted to send a temporary funding patch to President Donald Trump, who is expected to sign it into law — thereby punting the September 30 federal government shutdown deadline to December. 11.

 

The bill, or continuing resolution (CR), is necessary because Congress has not passed any of the Fiscal Year 2027 appropriations bills through both chambers.

 

Notably, the CR blocks the Office of Management and Budget (OMB) from implementing changes to the way agencies approve federal grant awards while the CR is in effect.


OMB’s sweeping proposed rule calls for review of grants by political appointees, allows for grant cancellations for any reason, prohibits grant funds from being used for publishing and conference attendance, and restricts international research collaboration.

 

NASPGHAN thanks those members who contacted their members of Congress through the NASPGHAN Action Center in opposition to the OMB rule.

 

 

Epic Launches Real-Time Prior Authorization Check

 Epic has launched a tool that lets clinicians instantly check inside the EHR whether an insurer requires prior authorization for a treatment — no more phone calls, faxes, or hunting through payer portals.

 

The Coverage Requirements Discovery (CRD) Application Programming Interface (API) is already live at four health systems—Ochsner Health, Froedtert ThedaCare, Denver Health, and Summit Health—where it is being used to check prior authorization requirements with UnitedHealthcare, Aetna, and Network Health. Another 16 payers are currently testing the API, putting these organizations nearly five months ahead of CMS’ January 2027 deadline requiring most Medicare Advantage, Medicaid, and ACA Marketplace insurers to implement similar APIs (TechTarget).

Make Your Voice Heard in the 2026 NASPGHAN Election


The 2026 NASPGHAN Election closes next week. If you haven’t yet voted, now is the time to review the candidates and make your voice heard in selecting NASPGHAN’s next leaders.


A reminder ballot was emailed via SurveyMonkey to eligible nonvoters on Monday, August 31. Please check your inbox and submit your personalized ballot by Thursday, September 10, at 11:59 PM ET.


Eligible voting members who have not received a ballot should contact Steve Farace, Director of Member Engagement, at sfarace@naspghan.org.

Are you interested in advancing pediatric gastroenterology, hepatology, and nutrition through research, education, advocacy, and philanthropy?


Applications are open to serve on the NASPGHAN Foundation Board of Directors - the site closes September 8.


For the 2027 open positions, the Foundation is currently seeking approximately two NASPGHAN members with expertise in Nutrition, Procedures/Endoscopy, non-IBD luminal GI, Health Equity, and Pancreatology.


The Foundation is committed to inclusive representation across the pediatric GI community in North America. Applications from members practicing in Canada and Mexico are strongly encouraged.

 

Review the full application requirements and submit your application here.