Hemophilia B Monthly

Empowering Through Education and Community

October brings a new month and, for many of us, the welcome feel of crisp autumn air. It is a time to raise awareness about important issues affecting our health and well-being, care for ourselves, and support one another.

This October, we also have much to celebrate. We are honored to recognize two extraordinary physicians, Dr. Marilyn Manco-Johnson and Dr. Steven Pipe, with the Eternal Spirit Award, and Senator Dean Murray with the 2026 Legislative Leadership Award. We are also proud to award six scholarships, helping members of our community take their next steps toward a brighter future.

Along with awareness and celebration, October brings a little playful fun. Children and adults alike enjoy dressing up for Halloween, visiting a pumpkin patch, bobbing for apples, or spending a day at a wonderful community fair. And if life offers you a few tricks, we hope October brings plenty of treats!

There is something special about this month: the changing leaves, the laughter, and the chance to come together. May your October be filled with connection, good health, and moments of joy.

Kim Phelan

CEO

Factor Nine Holiday Fund

It's time for the Coalition for Hemophilia B's Holiday Fund!

This program is specifically for families experiencing financial crisis. Our budget is limited, and we want to make sure we reach those who need it most. If your family is in need of support this holiday season, please apply by November 17.

Apply Today - Deadline is November 17

Apply for a Travel Grant for the 2027 Annual Symposium!

Travel Grants are funding provided by the Coalition for Hemophilia B to help cover the cost of travel and hotel so your family can attend the Symposium. This support is made possible by our generous event sponsors.

The Countdown Is On! 11 Weeks Left to Apply.

Apply Today

Weekly Reset with Renk

🗓️ October 1, 8, 15, 22 and 29

🕒 7PM ET

A 60-min live-streamed series, in the B-Hub with Renk Koçtürk

Join HERE

Foto Latino de Hemofilia B

🗓️ October 19

🕒 8PM ET

Speaker: Andrew Almazan Anaya

Topic: ICE and Family Safety

Meal vouchers for registered participants

VIEW EVENT ->

Understanding a Rebalancing Therapy Option for Hemophilia

🗓️ October 20

🕒 8PM ET

Speaker: Bradley Schoenfeld

Meal vouchers for registered participants

VIEW EVENT ->

Seen. Believed. Livestream Series for Women & Girls

🗓️ October 21, 28. November 4, 11, 18, 24

🕒 8PM ET

6-Week Virtual Series in the B-Hub

VIEW EVENT ->

Living B Men's Collective

🗓️ November 5

🕒 8PM ET

Speaker: Jamie Buhler

Topic: Building Community & Giving Back

Meal vouchers for registered participants

VIEW EVENT ->

The Caregiver Thread

🗓️ November 13

🕒 8PM ET

Speaker: TBD

Topic: Understanding 504 Plans

Meal vouchers for registered participants

VIEW EVENT ->

Voices of Her Bloodline

🗓️ November 16

🕒 8PM ET

Speaker: Shellye Horowitz, MA PPS

Topic: Spirituality and Chronic Illness

Meal vouchers for registered participants

VIEW EVENT ->

Word of the Month

Deductible

A deductible is the amount of money you pay out of pocket first before your health insurance starts helping with the cost of your care. The amount of the deductible will depend on your plan. It might apply just to medical care, just to prescriptions, or to both.

Visit the Hemophilia B Glossary

Fall Meetings on the Road

Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.

Connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

Redondo Beach, CA: November 7

Unstoppable Ambition

Johnathon's Journey

Living with hemophilia B, Ryan continues to embrace new opportunities and pursue his passions. Now 19, he is following in his father’s footsteps as a volunteer firefighter while enjoying music, woodworking, and time with friends. Through his dedication to serving others, Ryan is building a future defined by purpose, perseverance, and community.

Read Johnathon's Story

In Remembrance

It is with heavy hearts that we share the passing of Pam Wilson, a cherished member of our Coalition for Hemophilia B family.

Pam spent her career caring for others as a Licensed Practical Nurse, and that same compassion carried into our community. Her kindness, her wisdom, and her generous spirit touched so many of us, and she will be deeply missed.

We extend our deepest condolences to Pam's family, friends, and all who loved her. May her memory be a blessing.

The Coalition for Hemophilia B | 880 Third Avenue, 5th Floor | New York, NY 10022 US

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