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Because Digestive Health Matters
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International Foundation for Gastrointestinal Disorders April 2020 eNewsletter
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Greetings!
April is Irritable Bowel Syndrome (IBS) Awareness Month
Worldwide, an estimated 10 to 15% of the population is affected by IBS, and 25 to 45 million Americans currently live with this gastrointestinal (GI) disorder. Often, individuals who suffer from IBS find themselves on a quest for answers about their overall health, how to manage their symptoms, and treatment availability.
This month, IFFGD encourages the public to share their questions on social media using hashtags
#IBSAwarenessMonth and
#IWant2Know. This social campaign is designed to generate a conversation about IBS and to raise awareness about the importance of improving the quality of life for those living with this GI condition.
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Did you know that gastrointestinal (GI) disorders are eight times more common among children with autism?
The most common GI disorders include:
- Chronic constipation
- Abdominal pain
- Gastroesophageal reflux
- Bowel inflammation
To learn more about Autism and GI disorders click
here
.
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GI Research on the Road is a program developed by IFFGD to
promote awareness and education on topics of interest to the digestive health community through video-based learning.
For many people with intestinal disorders, knowing what to eat and what not to eat can be a challenge.
Diet can sometimes be the cause of discomfort and symptom flares which often results in patient frustration.
At the 2019 James W. Freston Conference, IFFGD interviewed Dietitian Emily Haller from the University of Michigan to gain a better understanding of the importance of a Gastroenterologist and Dietitian working together.
Click the button below to watch IFFGD's interview with Dietitian Emily Haller.
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Sleep disturbances are recognized as a common problem for children and adolescents with chronic pain conditions.
Research shows that up to 45% of children with functional GI disorders have problems sleeping.
Adequate sleep, in contrast, appears to directly promote tissue healing, immune function, and the body’s natural pain relief systems.
Practices that help improve sleep may, therefore, be of benefit to any child with a GI disorder.
Click the button below to learn six ways you can help improve sleep quality in children.
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Diet, Nutrition and Digestive Health: Finding the Balance in Food for Life
IFFGD along with the University of Michigan Gastrointestinal Department partner with the Food for Life Kitchen for a Norton Education Series event. This educational event will discuss how the foods we eat affect our bodies and overall health.
When:
Sunday, October 11, 2020 at 9:30 AM – 2:00 PM EDT
Where:
East Ann Arbor Health and Geriatrics Center
4260 Plymouth Road
Ann Arbor, MI 48109
Visit our event
page
or follow us on social media for the event updates.
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IFFGD's 2020 Virtual Advocacy Event
IFFGD's 2020 Virtual Advocacy Day will be a web-based event held on July 26-27, 2020.
More details will come in the near future as we update the current event
page
.
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While caring for family, friends, and others, it's important not to lose sight of yourself and your self-care.
Taking time to practice self-care is a critical part of managing symptoms of IBS or other digestive health condition.
For tips to help reduce stress, click the button below.
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For over 20 years, IFFGD has been studying IBS and the corresponding impact on patients, and this year IFFGD is reimplementing the
IBS Patients' Illness Experience and Unmet Needs Survey
.
IFFGD is reimplementing this survey to evaluate the illness experience and unmet needs of the IBS patient community today.
Please note that this survey will take approximately 30-45 minutes to complete.
If you are living with IBS and would like to participate, click the button below to begin the survey today.
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Clinical trials and research studies help to improve our understanding of the underlying mechanisms of diseases and advance the development of new and better treatment options. By participating in a study, you can help further the advancement of research and learn more about your condition.
Here are 3 studies currently recruiting participants
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2019 Research Recognition Award Winner Ilan Koppen, MD, PhD
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Recognizing the critical role of research in advancing the understanding and care of chronic gastrointestinal (GI) illnesses in adults and children, IFFGD was pleased to present its
2019 Research Recognition Awards
to three young investigators at Digestive Disease Week (DDW) 2019 in San Diego, California.
This month we are highlighting IFFGD's 2019 Research Recognition Award Winner, Ilan Koppen, MD, PhD.
Dr. Koppen is a resident physician in the Department of Pediatrics at Spaarne Gasthuis in Amsterdam and is involved in active research with the Amsterdam University Medical Center and Emma Children's Hospital.
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Currently, he is working on a collaborative study between several pediatric motility centers to combine and compare data on colonic dysmotility and parameters that may predict treatment outcome after surgery or sacral nerve stimulation.
He hopes to improve long-term outcomes by identifying patients who may be more likely to respond to treatment and by investigating the nature of complications associated with surgical treatment.
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Additionally, these approaches will be compared with other noninvasive neurostimulation options, such as abdominal transcutaneous electrical stimulation (TES) and posterior tibial nerve stimulation (PTNS).
Dr. Koppen is also exploring ways to support children and their families in the outpatient setting through digital health solutions.
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IFFGD is a nonprofit organization. We rely on donor support to fund research and to provide reliable information and support to those affected by chronic gastrointestinal disorders.
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