Ashley joined the board in 2023 and has Von Willebrands disease, along with her sister and mother. She is passionate about spreading the word and sharing her experiences with those she encounters.  She lives in Calgary with her husband, Nicolas, where they raise 4 chickens and tend to their garden. She is excited to be part of the Alberta Chapter Board of Directors and looks forward to making an impact

We are currently looking for people with financing, fundraising or board governance experience to join committees and the board. If you are interested in getting involved, please contact us for further information.

Alberta Chapter

World Congress Travel Grant

The CHS Alberta Chapter will offer partial reimbursement of qualified expenses to enable volunteers who have demonstrated commitment to the mission and work of the CHS to attend the Hemophilia World Congress. This year's congress takes place in Madrid, Spain from April 21-24, 2024.

The partial reimbursement is open to individuals with an inherited bleeding disorder or a family member. A committee will choose the volunteers from the received applications based on defined criteria. Applicants will be eligible to receive reimbursement to a maximum of $2000 per person, receipts required. Two recipients will be chosen to a maximum of $4,000. If no suitable applicant/applicants can be found, no sponsorship will be paid out.

Applications dues March 10th , 2024

To qualify, the following criteria must be met:

Eligibility Criteria:

• Candidates must have actively volunteered or participated in a CHS Alberta Chapter event within the last 5 years.

• Preference will be given to individuals who have demonstrated a commitment to the CHS community through their involvement.

Financial Support

• The CHS Alberta Chapter is offering sponsorship of up to $2000 per attendee for the World Congress in 2024.

• This financial support is intended to cover registration fees, travel, and accommodation expenses associated with attendance.

For more information please contact us at the albertachapter@hemophilia.ca



Every year, countless kids eagerly anticipate camp. With summer approaching, campers are ready to reunite with old friends and connect with new ones at our annual kids bleeding disorder camp.

We can't wait for another amazing year!

Your child's adventure starts with a 5 day, 4 night stay in comfortable dorm rooms, with dedicated counselors, and a refreshing pool all located at Camp Kindle, Alberta. Each day is packed with thrilling activities ranging from water adventures to indoor fun and energizing physical challenges. As night falls, the excitement continues with campfire sing-alongs, captivating stories, and lively dance parties.

For added peace of mind, the medical clinic caters to groups requiring extra medical attention or support. The nursing team is experienced in caring for those living with bleeding disorders and provides swift onsite medical assessments when required. You may even recognize some of the nursing team from your clinic appointments! They can't wait to welcome your child(ren).

Children aged 7-17 with a bleeding disorder are invited to join us. Camp is scheduled for July 8-12, 2024.

To secure your spot, please register using the provided link below.



For more information please click here.



Registration deadline: May 31, 2024.

Mark your calendars and stay tuned for more information.

Please see our website for further details.

The Canadian Hemophilia Society Alberta Chapter is committed to reaching out with information to every man, woman, and child in the country by educating them on the benefits of early diagnosis and how to better treat and manage these disorders.

Help our chapter by hosting a Red White & You event:

Wear Red or White day 

Organize a day in your school or workplace where participants who wear red or white donate a toonie for your chapter.

Host a Red White & You Kiosk

Host an awareness kiosk at a local mall where visitors can find helpful information. 

Hold a Red White & You Raffle

Hold a raffle and offer a great prize, perhaps a red or white ipod or similar colour-themed item.

Organize a Red White & You Fundraising Event

Organize a fundraising event such as a Walk-A-Thon to raise money for your Chapter and help Canadian children and adults affected by a bleeding disorder.

Materials for these events can be downloaded online on the CHS WEBSITE

On April 17, 2024 the Edmonton High Level bridge and the Calgary Tower will be lit up Red in honour of Inherited Bleeding Disorders and World Hemophilia Day.

A series of podcasts featuring well-known patient and physician experts will provide important answers, for example: What are the clinical trial results in hemophilia GT? What is the shared decision-making process in hemophilia GT? What is it like to receive it? What other approaches to hemophilia GTs are down the road

Health Canada has approved Hemgenix gene therapy for hemophilia B.

You can read all about it at:



https://chscontact.ca/health-canada-approves-hemgenix-gene-therapy-for-hemophilia-b.



The CHS Board of Directors is recruiting.



CLICK HERE for all the details and to apply.

DEADLINE: February 29, 2024.

Opportunities to participate in marketing research studies

From time to time the CHS collaborates with market research companies. We believe that market studies can provide valuable information to companies on how to improve their products and services.

Keep your eyes open for postings about future market research studies.