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SNAP: Supportive Noninvasive Ventilation for Acute Chest Syndrome Prevention in Children with Sickle Cell Disease
Meet Dr. Robyn Cohen and her team at Boston Medical Center who
are pioneering an innovative approach to prevent acute chest syndrome (ACS)
in children with sickle cell disease (SCD) through the use of SNAP (Supportive Noninvasive Ventilation).
The team conducted interviews with 34 participants at 3 institutions to explore
what patients, parents, and inpatient health care team members think about the novel use of bi-level positive airway pressure (BiPAP) ventilation on general pediatric inpatient unit to prevent ACS and respiratory decompensation in medically stable patients with sickle cell disease.
The study indicates that there was strong agreement that BiPAP is perceived as effective by patients, parents, and healthcare providers. Using BiPAP as preventive care among stable patients with sickle cell disease is also felt to be appropriate on a general pediatrics unit and does not require transfer to the ICU (unless the patient's clinical status requires a higher level of care). The main challenge remains improving patient comfort with BiPAP use.
| This pilot study, co-funded with the BU CTSI, will be crucial in shaping a comprehensive hybrid intervention trial. This research sets the stage for a multicenter trial that could transform ACS prevention, enhancing care for children with SCD across various healthcare settings. |
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Reminder: Applications Open | | | |
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Training for Bench, Clinical,
Biomedical, Translational and Population Health Researchers
Application Deadline: Aug. 1, 2024
Are you planning to submit a Career Development Award? Have you assembled mentors and developed a Specific Aims page, but want to ensure that you submit the most competitive application possible? Learn More
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Program for Early Career Research Development (PERC)
Application Deadline: Aug.9, 2024
The PERC will provide a roadmap and targeted guidance for senior post-doctoral fellows, post-doctoral associates, and early career faculty (both MD and PhD) committed to launching an independent research career. Learn More
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Equity in Access Research Program: 2024 Request for Proposals
Building Evidence for Effective Interventions to Increase Therapeutic Cancer Clinical Trial Accrual: Promoting Access for Patients from Underrepresented Groups
Maximum Awards of $2.5 million each for over 5 years
Grant starting date of Jul. 1, 2025.
This RFP will fund research studies that will increase our understanding of effective interventions for increasing accrual in therapeutic cancer clinical trials, particularly among underrepresented populations. LLS is especially interested in proposals that address multilevel barriers that impede clinical trial participation (as many prior studies have focused primarily on mitigating patient-related barriers only).
Learn More
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Computing Resource—The New England Research Cloud (NERC)
NERC is an open-source cloud developed by academic researchers for academic researchers, designed to encourage innovation as part of the MOC Alliance, a project hosted at BU’s Hariri Institute. It is available for research and education users. Learn more
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New Publication in American Journal of Public Health! | |
Building Power on Mass&Cass:
A Community-Centered Approach to Addressing Health Resource Gaps
for Persons Experiencing Homelessness in Boston, MA, 2021
This manuscript, led by Kareem I. King Jr., Research Program Manager at the BU CTSI CE Core, focuses on a community-centered initiative launched in November 2021 to address health resource gaps for persons experiencing homelessness (PEH) in Boston, Massachusetts. This program provided access to free COVID-19 education, testing and other essential services at Mass&Cass, a short distance from BU Medical Campus. It was a joint effort involving a housing and health justice organization, a student-led non-profit, as well as hospitals, public health organizations, and advocacy groups. Read More Here
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Leading Breakthrough Science Teams:
Opportunities and Challenges in Team Science
Jul 11, 2024 | 2 –3:15 pm via Zoom
| The field of The Science of Team Science has identified characteristics of successful teams and best practices that, when implemented, can improve how a team works together. This talk will cover the opportunities and challenges of cross-disciplinary research, with a focus on practical, accessible, and feasible strategies and practices that both individuals and teams can implement. The talk will also highlight ways that postdocs, specifically, can impact their team's culture and approach to research, all while developing their own leadership practices to take into the next phase of their careers. Learn More |
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Dr. Rolland’s research
focuses on coordination and collaboration in team-science projects, including how to design, build, and evaluate infrastructure to support complex, multi-investigator initiatives.
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Dr. Roland is a translational science strategist with the Michigan Institute for Clinical & Health Research (MICHR), the University of Michigan's Clinical and Translational Science Award. Previously, she served as the Director of Team Science + Research Development for the Carbone Cancer Center and the Institute of Clinical and Translational Research at the University of Wisconsin-Madison. She holds a PhD in Human Centered Design & Engineering and a Master of Library & Information Science, both from the University of Washington, and a Master of Public Health from Johns Hopkins Bloomberg School of Public Health.
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The Funding Acknowledgement guides recipients of BU CTSI services, resources, or funding for projects or research through the grant citation process. All recipients are required to cite our grant number in associated presentations and journal publications.
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