hemob.org



A National Non-Profit Organization Serving the Hemophilia B Community for 35 Years

Dear Friends,

As we reach the end of October and welcome the beauty of November, we find ourselves surrounded by the magic of the season, the comforting scent of pumpkin spice, the joy of apple picking, and the warmth of gathering with loved ones. Whether you’re admiring the colors of fall or enjoying the sunshine in a warmer climate, this is a time to pause, reflect, and embrace gratitude.

Let us celebrate life’s simple pleasures, from the laughter of children trick-or-treating to the comfort of a hot cup of coffee or soothing herbal tea shared with a friend. And as we move into November, it becomes a season of gratitude, a time to appreciate what we have, cherish the memories we’ve made, and create new ones with those we love.

The world around us can feel uncertain and chaotic, but the spirit of the season reminds us of what truly matters: family, friendship, and love. Whether you’re enjoying a cozy bowl of soup on a cool day or a refreshing evening breeze in a warmer place, take time to be present. Enjoy the meals, the laughter, and the company of those who bring joy to your life.

May this season bring you peace, gratitude, and a renewed sense of connection, no matter where you are or what the weather may be.

With heartfelt gratitude,

Kim 

CEO
The Coalition for Hemophilia B

 Gratitude

“Gratitude turns what we have into enough.” 
— Anonymous

WAYS TO ATTEND

There are four ways to attend the Symposium:

• Airfare Travel Grant
• Driving Travel Grant
• 2026 Golden Ticket Winner (awarded at 2025 Meetings on the Road)
• Non-Grant Attendee (covering own costs)

ADVOCACY CORNER

Upcoming Key Deadlines


You’ll want to review any changes for the upcoming year (deductibles, co‐pays, formulary changes, specialty drug coverage).

Individual & Family Marketplace Plans (Affordable Care Act / Centers for Medicare & Medicaid Services (CMS) Market)


• The next Open Enrollment Period (OEP) for plans purchased via the Marketplace generally opens November 1, 2025, and runs through January 15, 2026 in most states.
• If you enroll by December 15, 2025, your plan coverage can start January 1, 2026 in most states.
• If you enroll between December 16 and January 15, your coverage typically starts February 1, 2026. 
• After the OEP closes, enrolling is only possible via a Special Enrollment Period (SEP) triggered by a qualifying life event (loss of coverage, move, marriage, etc.). 
  

Employer-Sponsored Plans


• If you get insurance through your employer (or your spouse’s employer), your employer may set a different open-enrollment window (often end of year). It’s critical to watch for your company’s communications. 

Medicare (if/when relevant)


• For those eligible for Medicare, the Annual Enrollment Period runs October 15 through December 7 each year.
• Important for prescription drug coverage (Part D) and any advantage plan changes.

⛳️ ⚾️ 🏊🏼‍♀️ 🏀 Calling All Young Athletes With Hemophilia B, Ages 7-18! 

It's your time to shine in the "Gettin' in the Game" Junior National Championship. If you have a passion for basketball, golf, baseball, or swimming, we want to hear from you! 

Write an essay about "Why I Love [Basketball/Golf/Baseball/Swimming]" — Tell us why you love your chosen sport and what it means to you. 

Essays must be original and written solely by the student (sorry, no parental help allowed!) and submitted by November 30, 2025. Winners will earn a spot to compete in the Junior National Championship in Henderson, NV, May 1-3, 2026. 

Each winner must be accompanied by one adult caregiver to the event. This is more than just a competition; it's a chance to connect with peers, celebrate your strengths, and make unforgettable memories. Don't miss out on this unique opportunity to demonstrate your passion and potentially become a national champion in your sport! Apply today and take the first step towards national glory!

It's time for the Coalition for Hemophilia B's Holiday Fund!



This program is specifically for families experiencing financial crisis. Our budget is limited, and we want to make sure we reach those who need it most. If your family is in need of support this holiday season, please apply by November 3.

If you would like to help make the holidays brighter for a child in need, donations are always welcome. Every contribution, no matter the size, makes a difference.



Please donate on our website or mail checks to:

Coalition for Hemophilia B

Attn: Special Elf Kim

880 3rd Avenue, 5th Floor

New York, NY 10022

Thank you for your kindness and generosity. Together, we can help bring comfort, joy, and a little holiday magic to families who need it most.

Giving Tuesday is coming up on December 2, and this is our chance to show the world the heart and strength of our community. The Coalition for Hemophilia B isn’t just an organization, it’s a family. It’s about what it means to stand together, lift each other up, and celebrate the love that connects us.

Here’s how you can join in:

• Grab a piece of paper or poster and write: “Giving Tuesday #HemoB”
• Add your own touch, draw a heart, make it colorful, or paint something that speaks to your family’s journey. 
• Snap a photo OR record a quick video (15 sec or less) with your family holding the sign.  
• Send it to us by November 25: aprilw@hemob.org

PRIZES 

• The ultimate winner will receive a Golden Ticket to Symposium 2026!
• Everyone who submits will be entered into a raffle offering several gift cards! 

We’ll be highlighting our favorite photos + videos on social media to spread the word this Giving Tuesday.

So get creative, share your heart, and let the world see what The Coalition means to YOU. Together, your words, smiles, and drawings will speak volumes. Winners will be announced on December 5th!! 

Save One Life, Save the World

Impacting the Global Bleeding Disorders Community, One Life at a Time

Available on Spotify and Apple Podcasts

What does it mean to save a life—not just with medication, but with dignity, opportunity, and hope?



In this deeply moving episode, we sit down with Cindy Komar, Executive Director, and Debbie de la Riva, Ambassador Program Coordinator at Save One Life to explore how one sponsorship, one connection, and one act of compassion at a time is transforming lives for people with bleeding disorders in underserved countries. From scholarships and business grants to life-saving medication and emotional healing, this episode uncovers the ripple effect of empathy—and how you can be part of it.

UPCOMING VIRTUAL EVENTS

We have an incredible B-HUB Challenges coming up in the month of November! If you're not a member of the B-HUB yet, what are you waiting for?



Join today: connect.hemob.org to get in on the fun!

Upcoming Virtual Events

For more information and to register: hemob.org/events

Coalition members who join our virtual events will receive food vouchers! Please make sure your camera is on and you’re visible during the event.

Gene Therapy Rap Sessions

For men diagnosed with hemophilia B who are interested in, or are on gene therapy. Ages 18 and over.

Nov 13, 2025 with Lewis and Bobby
November 24 with Ian and Bobby

Dec 9, 2025 with Bill and Bobby

Nov 4, 2025

Foro Latino de Hemofilia B

Potenciar las voces latinas en la hemofilia B

Nov 13, 2025

Gene Therapy Rap Session

For men diagnosed with hemophilia B who are interested in, or are on gene therapy. Ages 18 and over.

Nov 18, 2025

Survive and Thrive, Mental Health

Tools for Wellness, Support in Community

Nov 19, 2025

B-Leaders Teen Virtual Event

Teen Virtual Rap Session and Game Night

Dec 3, 2025

Hemophilia B Product Landscape

Understand your treatment options with Dr. David Clark!

Dec 13, 2025

Gingerbread House Decorating + Trivia Night

Register by December 1st to receive a gingerbread house! 
CLICK HERE
Join us as our community gathers to decorate gingerbread houses and enjoy fun games together. 

Mental Health Mondays in the B-Hub

Gene Therapy Rap Sessions

For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming

Upcoming Dates



Oct 27, 2025 with Chad and Bobby

Nov 13, 2025 with Ian and Bobby

Dec 9, 2025 with Bill and Bobby