The First Ever Ramsay Hunt Syndrome Patient Summit!

What an Incredible Day!

On September 19, the Ramsay Hunt Syndrome Foundation proudly hosted its inaugural Face Forward Patient Support Summit in Chapel Hill, North Carolina.

What began as a vision became something truly extraordinary: a room filled with patients, families, friends, medical professionals, and advocates united by a shared purpose.

Throughout the day, we witnessed meaningful conversations, heartfelt connections, and an overwhelming sense of gratitude. Seeing so many smiles, hearing personal stories, and watching members of our community connect reminded us exactly why this Foundation exists.

To everyone who attended, participated, and supported us: THANK YOU. You made this day possible.

Highlights From the Summit

From expert-led discussions to hands-on workshops and powerful patient perspectives, Face Forward provided an opportunity to learn, connect, and move forward together.

Attendees had the opportunity to:

• Hear from leading medical professionals about Ramsay Hunt syndrome, treatment, and recovery.
• Explore practical strategies for facial rehabilitation and managing synkinesis.
• Connect with others who understand the challenges of living with Ramsay Hunt syndrome.
• Ask questions, share experiences, and build a stronger support network.

Our deepest gratitude goes to our speakers, panelists, moderators, sponsors, volunteers, and dedicated Board of Directors for making this inaugural event possible.

Most importantly, we thank the patients and loved ones who joined us. You are the heart of this Foundation.

The RHSF Board members at Face Forward 2026

Couldn't Attend? The Learning Continues.

We are excited to share educational content from Face Forward 2026 with our entire community!

Thanks to secured funding, we are working to make Summit presentations and resources accessible online, including for those who were unable to join us in person.

While our team prepares the full collection of recordings, we're pleased to share this featured presentation with you.

We will be posting these in the upcoming month along with clips from the Summit- be sure to be following us on social media channels for the latest.

The Best Is Yet to Come

Face Forward 2026 reminded us of the strength of this community and the possibilities ahead.

We look forward to sharing more patient stories, educational resources, Summit highlights, and opportunities to get involved in the weeks ahead.

Thank you for being part of this remarkable milestone.

With gratitude,

The Ramsay Hunt Syndrome Foundation (RHSF)

Help Us Keep This Momentum Going!

Face Forward was just the beginning.

The connections made, knowledge shared, and stories told at this Summit demonstrated the importance of our mission.

But our work doesn't end here.

Your donation helps the Ramsay Hunt Syndrome Foundation continue its efforts in patient education, advocacy, community support, and expanding access to valuable resources.

Together, we can reach more patients, support more families, and continue building a community where no one has to navigate Ramsay Hunt syndrome alone

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Make a Difference Today

Support the next chapter of our mission.

Donate to RHSF ♥