Because Digestive Health Matters

International Foundation for Gastrointestinal Disorders April 2025 eNewsletter

April is Irritable Bowel Syndrome (IBS) Awareness Month. We’ll be shining the spotlight on IBS, a GI condition that affects up to 45 million people in the United States and around 5-10% of the worldwide population. IBS is a chronic and unpredictable condition that can disrupt daily life, impact work productivity and take a toll on mental health.


This April, IFFGD is uniting with patients, family members, and caregivers to raise awareness via a month long online campaign about IBS. The focus of this year will be on the effects of IBS, specifically those extending beyond just digestive discomfort. It is linked with conditions such as anxiety and depression and can lead to isolation in a professional and social space. This month, we will share various resources that can be used to educate the public and promote a better understanding of digestive disorders such as IBS.


We invite you to engage in our social campaign by sharing materials from our toolkit, which can be found below, and using the hashtags #IBSAwarenessMonth and #MoreThanAStomachache on your social media platforms. 


Additional information about IBS can be found here .

IBS Awareness Month Media Toolkit

Our IBS Media Toolkit is full of all the information you need to get the word out about this Awareness Month. Find IBS statistics key messaging, how to get involved, how to share information on social media, and more linked below.


Join us in supporting the 45 million people in the United States with IBS and show your support! Raising awareness is crucial for enacting change, and we need your help to do it!


View our media toolkit by clicking here.

5 Minutes in GI

Join us as we continue last month’s meeting with Dr. Thangam Venkatesan and Dr. Benjamin Liu to further discuss Cannabinoid Hyperemesis Syndrome (CHS). Click the button below to watch April’s edition.

5 Minutes in GI

SIBO Awareness Day

We are excited to partner with MBiota Labs to announce an official SIBO Awareness Day on Tuesday April 8th.


Small Intestinal Bacterial Overgrowth (SIBO) is a condition where excessive bacteria grow in the small intestine, leading to symptoms like bloating, abdominal pain, diarrhea, and malnutrition. 


It is estimated that up to 22% of the population may be living with SIBO. SIBO shares symptoms with many other GI disorders, leading many researchers to believe that the true number of those with SIBO may differ. 


There are many similarities between SIBO and IBS, with SIBO often being the cause of some IBS symptoms. Patients with SIBO account for an estimated 75% of those dealing with IBS. 


Click the button below to learn more.

SIBO Awareness Day

On Monday, March 17th, IFFGD and 20 passionate patient advocates took to Capitol Hill to advocate for digestive health


We are grateful to have had the opportunity to gather with 20 attendees to visit 27 Congressional offices where we met and shared personal stories. We dropped off packets to numerous offices and called upon them to support legislation that will help drive meaningful change. Our advocacy efforts don't stop there- we are actively scheduling virtual meetings to keep the conversation going with Congressional leaders and ensure our voices continue to be heard.


The virtual premiere date for the educational portion will be announced soon on our social media pages. Stay tuned!

Workplace Awareness for IBS

IBS can significantly impact workplace ability by causing reduced productivity due to symptoms, absenteeism, presenteeism, and increased stress and anxiety during work hours. All of these can negatively impact job performance and work quality. 


IBS can affect the ability to concentrate and be productive, leading to a decline in work output. Constant worry and stress about managing symptoms can impact decision-making ability and well-being. Many people may find themselves isolating to avoid the stress of explaining symptoms. Many may end up avoiding certain careers all together because of symptoms. 


We encourage employees to advocate for themselves and urge employers to provide a safe and comfortable working environment for those with disabilities that may not visually present themselves. 

Workplace Awareness for IBS

IBS Advocacy and Policy

IFFGD is supporting a range of legislation aimed at better supporting the patient community just as we have done for the past 30 years.

 

We encourage you to do your own research and contact your representatives about supporting these initiatives or others that may be important to you:


Safe Step Act- This bill would establish a clear process for requesting exceptions to step therapy protocols and require group health plans to grant exceptions when specific criteria are met. Currently, health plans may require patients to try multiple medications before covering the one chosen by their provider, which can delay proper treatment and worsen conditions. This legislation mirrors laws in over three dozen states and aims to extend similar protections to federally regulated employer health plans 


HELP Copays Act- This bill requires health insurance plans to apply third-party payments, financial assistance, and discounts toward cost-sharing requirements. It closes a loophole allowing employer plans to exclude certain covered drugs from counting toward a patient’s deductible and out-of-pocket maximum. The bill ensures all private plans count cost-sharing for covered services.

IBS Advocacy and Policy
Clinical trials and research studies help to improve our understanding of the underlying mechanisms of diseases and advance the development of new and better treatment options. By participating in a study, you can help further the advancement of research and learn more about your condition.

Here are 3 studies currently recruiting participants:

Gastroparesis

Single-Patient Expanded Access Protocol for Tradipitant In A Single Patient With Gastroparesis

Gut Health (All GI Disorders)

Trial to Evaluate Dietary Supplements to Maintain Gut Health During Travel (P2)

Long COVID

Long-term Impact of Infection With Novel Coronavirus (COVID-19) (LIINC)

April Spotlight

IFFGD Research Award Past Winner Dr. Satish Rao

Dr. Satish Rao received his MD from Osmania Medical College, Hyderabad, India, his PhD from the University of Sheffield, UK., and the Fellowship of the Royal College of Physicians (FRCP) in London, U.K.


Dr. Rao has an international reputation as an innovative researcher, distinguished educator, Master Clinician and outstanding mentor. A recipient of numerous NIH grants, he currently has 2 RO1 and UO1 grants and 5 patents. He is the only physician who has received 4 meritorious honors from the AGA; the AGA Distinguished Clinician Award, AGA Masters Award for Outstanding Clinical Research, and the AGA Distinguished Educator Award and AGA Distinguished Mentor Award. In 2009, he was honored by the IFFGD Research Excellence Award for his work in the field of IBS.

He received PN Chuttani Oration award from the Indian GI Society, and ACG Distinguished Educator and Mentor and OGKTMA Distinguished Alumni awards among 75 other meritorious awards. Dr. Rao has edited eleven books. He has published over 550 articles with 30,000 citations and H index 100 and delivered 500 distinguished lectures in 40 countries worldwide. He has been selected as of the “Best Doctors in America” for over 25 years, successfully treated patients from 35 countries, and is Past President of the American Neurogastroenterology & Motility Society. 

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IFFGD is a nonprofit organization. We rely on donor support to fund research and to provide reliable information and support to those affected by chronic gastrointestinal disorders.
IFFGD | 414-964-1799 | iffgd@iffgd.org | www.iffgd.org
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