RadComp Newsletter April, 2021
RadComp Patient Advocate Special Edition
The Patient Voice and
 RadComp Advisors
The patient voice is paramount to clinical trials. Thanks to organizations like PCORI (Patient-Centered Outcomes Research Institute), more clinical trials than ever are incorporating the patient voice into the design and conduct of studies.


Pictured from top left: C. Daniel Mullins, PhD, Carole Baas, PhD, Cynthia Chauhan, MSW, Shelley Fuld Nasso, MPP, Holly Massett, PhD, Ivis Sampayo-Survivor-Advocate, Sharon Rivera-Sanchez, Survivor Advocate, Sheila Woodhouse, MD, MBA, Kimberly Wright Survivor-Advocate
Spotlight on Patient Costs

Dr. Daniel Mullins, Cynthia Chauhan of the RadComp SAC, and Hillary Edwards of the PATIENTS program discuss PCORI's new requirement “to consider the full range of outcomes data, including,...potential burdens and economic impacts related to the utilization of health care services", as a new area of investigation.

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It's Okay to be Scared

Breast cancer survivor and advocate Sharon Rivera-Sanchez has been there too, and she is reaching out to make a difference.


Advocacy Partner Events & Resources
What Cancer Patients Need to Know About the
COVID-19 Vaccines

Jean Sachs, CEO of LBBC, speaks to Steven Pergam MD, MPH, infectious disease expert and co-leader of the National Comprehensive Cancer Network COVID-19 task force about the safety, effectiveness and differences among the COVID-19 vaccines, including risk factors facing cancer patients versus the general public, and offering advice on next steps.

Focus Group Opportunity for Caregivers of HER 2+
Breast Cancer Patients

Cancer Support Community is hosting a paid virtual focus group for caregivers of people diagnosed with breast cancer. The focus group will discuss the experience of providing support for patients undergoing treatment, the role of the caregiver in the decision making process, desired tools and resources and the impact of side effects on day-to-day life. The group will last 4 hours. Participants will be compensated $360 for their time.

For information on participation, email: aschwartz@cancersupportcommunity.org
Young Survival Coalition (YSC) annual conference is going virtual
May 21-23, 2021

Registration is open, so save your spot today! It will be everything you love about YSC’s in-person Summit reinvented for the post-pandemic world. The agenda will include condensed days and shorter sessions; micro-bursts of knowledge, power and party time expert sessions mixed with a pajama party, dance breaks and small intimate hangouts.

Research & Publications
Publication

Congratulations to Dr. L. Christine Fang on her new publication,


Brachytherapy Jul-Aug 2020;19(4):401-411. doi:10.1016/j.brachy.2020.04.005.

Study Participant Enrollment
As of March 31st, 960 of 1278 participants have joined the RadComp Trial, 14 in the month of March.

We are 75% of the way toward reaching our goal of complete study enrollment.

Together we can reach the goal and power the future of breast cancer treatment.
Learn About RadComp
Research reported was funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (PCS-1403-12804). The views, statements, and opinions presented in this study website are solely the responsibility of the author(s) and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee.