July 2024

Hello Invaluable California Sickle Cell Stakeholders,  

We are happy to report that our program is doing well as we approach the close of the first project year in our (5yr) grant cycle. Below you’ll find exciting program updates, new graphics, and links to recently published SCDC materials. 

Our CA SCDC team also wanted to take a moment to recognize Sophia Horiuchi, a Research Analyst who will leave our team at the end of the summer to focus on completing her Master of Public Health at UC Berkeley. We want to acknowledge and celebrate her remarkable impact on our team and our work at Tracking California. Sophia joined our team in 2019 and has been the lead author on several high-impact publications (linked below), showcasing her expertise and contributing valuable insights to the field. She has developed into the surveillance lead for SCDC work, mentoring new data analysts and guiding them with her knowledge and experience. Sophia has also represented the SCDC program at national conferences, delivering invited oral and poster presentations that highlight our work and its significance. Her presence will be deeply missed, but we are excited to see all she will achieve in her future endeavors. 

A word from Sophie: 

"I am deeply grateful for my time with the SCDC program. I will miss the wonderful community working to improve the quality of life for people with sickle cell disease. Thank you for all the collaboration and mentorship and I look forward to staying connected." 

Program Announcements + Highlights

Publications

Valle J, Lebensburger J, Garimella P, Gopal S. Prevalence, Mortality, and Access to Care for Chronic Kidney Disease in Medicaid-Enrolled Adults With Sickle Cell Disease in California: Retrospective Cohort Study. JMIR Public Health Surveill 2024;10:e57290 doi: https://publichealth.jmir.org/2024/1/e57290. DOI: Read the full article here

Horiuchi SS, Reeves SL, Plaxco AP, Peng HK, Zhou M, Kayle M, Hulihan M. Medicaid Coverage in Early Childhood for Children With Sickle Cell Disease. JAMA Netw Open. 2024 Jul 1;7(7):e2421491. doi: 10.1001/jamanetworkopen.2024.21491. PMID: 38995648; PMCID: PMC11245719.Read the full article here

Rushing M, Horiuchi S, Zhou M, et al. Emergency department 30-Day emergency department revisits among people with sickle cell disease: Variations in characteristics. Pediatr Blood Cancer. 2024;e31188. Read the full article here 

Reeves SL, Plegue M, Patel PN, Paulukonis ST, Horiuchi SS, Zhou M, Attell BK, Pace BS, Snyder AB, Plaxco AP, Mukhopadhyay A, Smeltzer MP, Ellimoottil CS, Hulihan M. Assessing Patterns of Telehealth Use Among People with Sickle Cell Disease Enrolled in Medicaid During the Start of the COVID-19 Pandemic. Telemed J E Health. 2024 Apr 11. doi: 10.1089/tmj.2023.0422. Epub ahead of print. PMID: Read the full article here

Kayle M, Blewer AL, Pan W, Rothman JA, Polick CS, Rivenbark J, Fisher E, Reyes C, Strouse JJ, Weeks S, Desai JR, Snyder AB, Zhou M, Sutaria A, Valle J, Horiuchi SS, Sontag MK, Miller JI, Singh A, Dasgupta M, Janson IA, Galadanci N, Reeves SL, Latta K, Hurden I, Cromartie SJ, Plaxco AP, Mukhopadhyay A, Smeltzer MP, Hulihan M. Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability - Sickle Cell Data Collection Program, 11 States, 2016-2020. MMWR Morb Mortal Wkly Rep. 2024 Mar 28;73(12):248-254. doi: 10.15585/mmwr.mm7312a1. PMID: 38547025; PMCID: Read the full article here

Anderson AT, Mack WJ, Horiuchi SS, Paulukonis S, Zhou M, Snyder AB, Doctor JN, Kipke M, Coates T, Freed G. National Quality Indicators in Pediatric Sickle Cell Anemia. Pediatrics. 2024 Apr 1;153(4):e2022060804. doi: 10.1542/peds.2022-060804. PMID: 38444343; PMCID: Read the full article here

The Alphabet Soup of CA Health Care - Making the Most of GHPP and CCS (May 2024) 

Executive director of the Hemophilia Council of California, Lynne Kinst reviews two key CA healthcare programs, the Genetically Handicapped Persons Program (GHPP) and California Children's Services (CCS), how to apply and best utilize the benefits these programs offer

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What's New for the Sickle Cell Data Collection Program (March 2024) 

The California SCDC team shares program updates, and activities for the coming year, as well as updated data on the CA population. We'll also be joined by our new partners in Texas! The Texas SCDC team will share updates on program implementation, as well as activities for the coming year.



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