Events | Research Center | Phantom Tea & Wine

October Happenings!
 

World Chromosome 18 Day - December 1st!

The 3rd Annual World Chromosome 18 Day is back! Couldn't make it to Conference this year? Or did you join us for Conference and want more?" World C18 Day is a unique virtual, one day "mini-Conference" with educational sessions with the medical team from C18 CRC with a combined 50+ years of experience with Chromosome 18 conditions and a chance to ask your questions, syndrome breakouts with other parents, and of course, a holiday dance party! See you December 1st for this global event!
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See the full schedule here.
Events

Phantom Tea & Wine

Phantom Tea & Wine and Year-End Giving comprise Chromosome 18’s most important fundraiser of the year, and it’s easy to get involved!

This virtual “phantom” tea and wine celebration has been a tradition at Chromosome 18 for over 25 years for our families and friends. As the year comes to a close, we ask our members to make a year-end gift through one of many different ways we have available for you to give.
Phantom Tea & Wine

Chromosome 18 Clinical Research Center News!

Why is my child so different from other children with the same condition?

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Staff Pictured left to right: Aamuktha Pentala, Brittany Antopia, Dr. Jannine Cody, Dr. John Gelfond, and Dr. Kameel Karkar
 

Board Elections are here!

Would you like to volunteer on the board and help guide the growth of Chromosome 18? Serving terms begin January 1, 2025!

Email office@chromosome18.org for nominations and self-nominations!

Save The Date for Camp!

We have new dates for our 2025 Starfish Camp in San Antonio! More details and registration coming soon. Save the date for March 7-9th for Camp at Morgan's Camp!

October Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with self-advocate, Julia Furgiuele, as she shares about her life!

Family Costume Dance Party is Tonight!

Wear your costumes and bring your dance moves for the annual costume dance party! Join in tonight at 7pm CT (U.S.) on zoom!

Celebrating World Chromosome 18 Day Around the World!

In the lead up to World Chromosome 18 Day, Brisbane City Council, Australia will light up landmarks around Brisbane to support Chromosome 18. For families in Brisbane on Thursday 28th November, come along and celebrate! We will meet at the Riverside Green, Southbank where we will view the Victoria Bridge as it lights up. For families wanting to see the lights on the Story Bridge, we will ride the CityCat along the river at dusk. Other landmarks to be lit up are the Breakfast Creek Bridge, Reddacliff Place sculptures, and the Wickham Terrace car park architectural wall.
 

Welcome to the Chromosome 18 Family!


Katherine Ekovich, 18q-, Mid-Atlantic

Lianne Visser, Tetrasomy 18p, Netherlands

Maegan Price, 18p-, West

Stephen Fuentes, 18p-, Texas Area

Paola Henao, 18p-, Southeast

Aroosa Asif, Trisomy 18, United Kingdom

Grace White, 18q-, West

Christine Roman, 18p-, Mid-Atlantic

Damion Hunt, 18q-, Great Lakes

Anne Wilson, 18q-, Great Lakes

Elisabeth Arendt, 18p-,Great Plains

Kelsey Davis, 18p-,Southeast

Michelle Flores, Ring 18,Great Plains

Thank you and Happy Birthday to Devon Lacey, Danielle Sorrells, Lisa Gurwitz, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers! 
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Contact Us

210-657-4968

office@chromosome18.org

The Chromosome 18 Registry & Research Society | 7155 Oakridge Drive | San Antonio, TX 78229 US

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