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Groups Move to Protect Public Health Data and Resources
An executive order signed by President Trump on January 20 directs all federal agencies to "remove all statements, policies, regulations, forms, communications, and other internal and external messages that promote or otherwise inculcate gender ideology, and shall cease issuing such statements, policies, regulations, forms, communications, or other messages." In the wake of this order, more than 80,000 pages from more than a dozen U.S. government websites were taken down.
On Feb. 4, Doctors for America sued the Office of Personnel Management (OPM), the CDC, the Food and Drug Administration (FDA), and the Department of Health & Human Services (HHS) for the removal of a broad range of health-related data and other information used by health professionals and researchers from publicly accessible government websites.
On Feb. 11, U.S. District Judge John Bates agreed to a temporary restraining order requested by Doctors for America and ordered government agencies to restore the scrubbed webpages. According to an article in the Associated Press, the CDC restored pages and datasets on adolescent health, information on HIV monitoring and testing, contraception guidance, and data on how pollution, poverty and other factors impact certain communities. Some reinstated pages now appear with a disclaimer "rejecting" the "biological reality" of the contents therein.
Several organizations are stepping up to preserve important government health care data and guidance online. The nonprofit Internet Archive houses hundreds of CSV files, metadata files, zip files, PDFs of infographics, and more, uploaded before January 28, 2025. In addition, The American College of Obstetrics and Gynecology (ACOG) hosts PDFs of relevant government guidance it has endorsed.
In his granting of the temporary restraining order, Judge Bates noted that the time it would take to track down public health information through alternate sources is time taken away from patient care, stating: "These doctors' time and effort are valuable, scarce resources, and being forced to spend them elsewhere makes their jobs harder and their treatment less effective."
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