IN POLITICO!


HHS SECRETARY KENNEDY ENGAGES AAKP, NEW HHS REPORT REFLECTS PATIENT CONCERNS

Read in Politico (see below)! AAKP President Edward V. Hickey, III, was invited to join The Honorable Robert F. Kennedy, Jr., Secretary of the U.S. Department of Health and Human Services, and Abe Sutton, Director of HHS/CMMI, and other stakeholders in Texas this week to discuss status quo kidney care, the Secretary's priorities for earlier disease detection, increased patient choice and voice in kidney care, greater innovation, and his plans for more aggressive, patient-centered kidney reforms.

The Secretary released a new HHS report that elevates patient insights, new kidney care opportunities, and puts a spotlight on barriers caused by the monopolistic and anti-patient practices of large dialysis organizations. AAKP deeply respects that Secretary Kennedy's family is a kidney and organ donor family and appreciates his sophisticated understanding of the unique burdens kidney and transplant patients face.



Ed thanked Secretary Kennedy for his leadership in responding to AAKP concerns about the lack of early disease screening for the most vulnerable Americans, barriers to increased patient access to new kidney innovations, transplant readiness, and how more lives and taxpayer costs can be saved through coordinated cardiac, kidney, and metabolic (CKM) care. Secretary Kennedy discussed his ongoing efforts to address chronic diseases, streamline kidney innovations, and increase transplant access for ALL Americans. Secretary Kennedy also reinforced the significance of the 2019 Executive Order on Advancing American Kidney Health, which AAKP was deeply involved in developing and supporting. AAKP launched its Decade of the Kidney™ initiative to ensure the 2019 Executive Order's policies were implemented and never forgotten.

RFK Jr.’s kidney plan would give a big win to the patient group that supported him

BY Carmen Paun | 10/20/2026 06:39 PM EDT

Kennedy said prevention would help many people avoid the need to undergo dialysis, which he said has seen no technological improvement over the past 50 years. | Rich Pedroncelli/AP Photo


Health Secretary Robert F. Kennedy Jr. announced a new national kidney plan Tuesday, foreshadowing broader screening for kidney disease. That would be a major win for a patient group that has called for it for years.


“There’s 36 million Americans who don’t know they have kidney disease, and the reforms that we put into place in the United States preventative health services [task force] are going to help us start screening more effectively so that Americans know,” Kennedy told reporters after visiting the JPS Health Network, a public health care system in Fort Worth, Texas.


The U.S. Preventive Services Task Force, made up of volunteer doctors, evaluates the benefits of preventive services, such as colonoscopies and mammograms. Under the Affordable Care Act, insurers must cover preventive screenings the task force finds to have at least moderate health benefits.


The panel said in 2012 that the evidence to assess the balance of benefits and harms of routine screening for chronic kidney disease in asymptomatic adults was insufficient.


The American Association of Kidney Patients, whose corporate members include drug companies that develop kidney disease treatments, including Novartis and AstraZeneca, has long criticized the task force for refusing to endorse universal screening. The association says that it would help prevent chronic kidney disease, saving both lives and money. Last year, it urged Kennedy to fire the task force’s members and appoint new ones.


Kennedy fired the task force members in May and appointed eight new members in September, many of whom were physician specialists, a break from past practice that favored general practitioners.


“We are very optimistic with the changes that Secretary Kennedy made to the USPSTF,” said Paul Conway, the patient group’s vice president and chair of policy and global affairs.


The task force had been reevaluating its position on kidney disease screening since before Kennedy took office last year. It was not immediately clear whether Kennedy’s statement Tuesday signaled that the task force, which he has called “lackadaisical and negligent,” would now recommend universal screening. Previously, recommendations were based on independent assessments of the benefits of screening and other preventive services.

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