June Newsletter!

Annual Family Conference in Niagara Falls, Canada

Our annual family conference is right around the corner! If you are attending:

All conference registration will close on June 29 at midnight CT

Congrats Graduates!

Congrats to the Graduating Class of 2025! We know you have all worked so hard and each one of you deserves a great celebration - Taylor Anama, self-advocate and one of these graduates, just graduated with his Associate of Arts degree! Taylor’s achievement is a testament to his hard work, perseverance, and commitment to reaching his goals.

Events

June 30: Self-Advocate Game Night - Zoom Call at 7pm CT

July 13-16: Annual Family Conference in Niagara Falls, Canada

July 18: Ring 18 Awareness Day!

July 22: Chicken N' Pickle Family Mixer in San Antonio, TX

July 26: Panera Bread Fundraiser in North Carolina

August 1-18: Power of 18 Challenge!

August 21: New Family Resource & Info Call

September 18: Pitt Hopkins Awareness Day

September 25: Tour & Talk Virtually with founder Dr. Cody at the Research Center

Every month, Chromosome 18 goes live on Facebook! Watch June's Facebook live with Alice Polley, Chromosome 18 grandparent and author of "The Great Gram"! 100% of her book sales goes directly back to the Registry. WATCH HERE

Clinical Research Center Newsletter

Some exciting updates! This month, the Chromosome 18 Registry provided an $89,000 donation to the Clinical Research Center.

June Article: A New Tool for Investigating Chromosome 18. Read Full Article HERE

Do You Use the Clinical Research Center Dosage Map?

The Chromosome 18 Research Center has an amazing resource that families can use that are enrolled in the research study. The dosage maps give families a closer look at those few genes that have a clinical impact when deleted or duplicated. Learn more and find how you can get this incredibly insightful resource here!

Starfish Dinner and Dance Tables

The 2025 conference in Niagara Falls, Canada in July will be here soon and you can reserve a family or corporate table at the Starfish Dinner and Dance! Raise or sponsor at least $1500 USD and you will be able to pick your choice of table (that seats 8-10 people) in the ballroom for the Starfish Dinner & Dance on July 16th! This sponsorship allows you to invite guests to join you at no additional costs. Get your table HERE!

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