We are excited to welcome our newest parent Volunteer Coordinator, Camilla Downs! She is looking forward to her role as 18p- Coordinator. Camilla Downs (pronounced like Pamela, but with a "C"), is mom to 20 year old Lillian Darnell (18p-) and 16 year old Thomas Darnell. Camilla has been a longtime member of the Chromosome 18 family. Her upbeat attitude and willingness to serve make her an amazing addition to our coordinator team! You can read Camilla's biography on our website here and watch her intro video here.
If you haven't already, please join your closed Facebook group for Chromosome 18 Registry 18p- Group by clicking here. You can connect with Camilla and other members in your 18p- Syndrome Group in that private/closed group.
If you would like to get in touch with Camilla or have any questions about Chromosome 18's upcoming virtual events, please reach out to our Program Service Coordinator, Holly Hood at programs@chromosome18.org.
