Events | Research Center | Starfish Dash

January Newsletter!

Starfish Dash 5K

The Chromosome 18 Registry & Research Society is proud to present the Annual 5K Starfish Dash Run/Walk & Health Fair for the 8th year in San Antonio, TX! free community event add in official fiesta event

Not in San Antonio? You can still be apart of the fun! Learn more on starting your own virtual Dash and print your race bibs here!

Events

Chromosome 18 Clinical Research Center News!

The Wisdom of Suzi and Her Gifts to the Community She Loved - A New Article from Dr. Cody

This month, Dr. Cody shares an story about a beloved longtime member of our community and her incredible contribution to chromosome 18 research.

Read the Full Article Here

According to a 2024 U.S. News & World Report, UT Health San Antonio ranks in the top 5% of institutions globally for clinical medicine. Click HERE to read the full article.

Save the Date for the Starfish Soiree and Golf Tournament!

Mark your calendars for the 21st Annual Golf Tournament and Starfish Soiree! Join us October 9th for the Starfish Soiree at Oakhills Country Club and on October 10th at Canyon Springs Gold Club. Registration coming soon!

Save the Date:

Chromosome 18 Golf Tournament - October 10

Starfish Soiree - October 9

Save the Date for 2025 Conference in Niagara Falls, Canada!

The 30th Annual Chromosome 18 conference is July 13-16 in Niagara Falls, Canada! Get your passports ready and join in this July. Registration and hotel details available soon!

Learn More

Rare Disease Day 2025

Rare Disease Day is on February 28th! Stay tuned for a short Facebook video from The Chromosome 18 staff. For Rare Disease Day, also check out an upcoming documentary, The Zebra & The Bear, about a mother's journey for answers for her daughter's rare disease. Learn more about Rare Disease Day Events near you here!

January Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with mental health therapist, Kenneth Sabourin.

Welcome to the Chromosome 18 Family!

Josiah Paul, 18q-, Southeast

Tristian Perez, 18q-, West

Milou Stokkel, 18q-, Netherlands

Adrea Tasselmyer, 18p-, Mid-Atlantic

Ainura Kanat, 18p-, Kazakhstan

Alice Chamberlain, 18p-, United Kingdom

Giovanna Valier, 18q-, Portugal

Khunsha Fatima, Pitt-Hopkins, United Kingdom

Rodrigo Maia, Trisomy 18, International

Tiarna Davis, Ring 18, International

Claudio Alcamo, 18p- Germany

Jessica Siegersma, Tetrasomy 18p, Rocky Mts.

Johanna Tanon, 18p-, Southeast

Shelby Berglund, Tetrasomy 18p, West

Ryan Loxley, Trisomy 18, United Kingdom

Susan Watson, 18p-, Great Lakes

Irene den Bak-Lammers, 18p-, Canada

Andrey Gorodilov, 18q-, Russia

Mehta Lekh, 18q-, India

Thank you and Happy Birthday to Rachel Bergner, Shannon Curry, Medina Downs-Franco, Debra Anne Kovacs, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers!

210-657-4968

office@chromosome18.org