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Word from our CEO
"To influence the decisions that shape research, clinical practice, and access to treatment, we must arrive prepared with evidence, expertise, and a deep understanding of both the science and the experiences of the people we represent.
This is why I encourage Myeloma Canada staff to develop strong scientific knowledge and credibility."
Read Martine's full message.
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In this issue...
- Myeloma Canada’s Advocacy Handbook: Newly updated!
- Myeloma Canada Board of Directors elects new Chair: Lorelei Dalrymple
- Myeloma InfoConference in Whitehorse
- Upcoming webinar: Understanding minimal residual disease (MRD) testing for myeloma patients in Canada
- Upcoming webinar: Comprendre le dépistage de la maladie résiduelle minimale (MRM) pour les personnes atteintes d'un myélome au Canada
- 10th annual Sam’s Monte Carlo Casino Night
- The Défi Everest Challenge is back for another year
- Spotlight on Miriam de Jong
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Video of the month: Multiple myeloma exercise program
- A peek at the PAC
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Myeloma Canada’s Advocacy Handbook: Newly updated!
Myeloma Canada’s National Advocacy Committee is proud to announce the release of a newly updated Advocacy Handbook for Canadians affected by myeloma. This Handbook replaces the 2022 edition and is the result of six months of in-depth review and re-development by members of the National Advocacy Committee.
Learn more and download the Handbook
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Myeloma Canada Board of Directors elects new Chair: Lorelei Dalrymple
This Spring, the Myeloma Canada Board of Directors elected Lorelei Dalrymple as Chair of the Board. Lorelei is a Team Lead with Alberta’s largest credit union and a passionate advocate for Canadians affected by myeloma. Since her diagnosis in 2009, she has held numerous leadership roles within the myeloma community, including President of the Myeloma Alberta Support Society and Chair of Myeloma Canada’s Patient Advisory Council.
Hear more from Lorelei
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Myeloma InfoConference in Whitehorse
Myeloma Canada hosts InfoConferences for people living with myeloma, their loved ones, and healthcare professionals.
Date : September 1, 2026
Time : 12:30 pm to 5:00 pm
Register
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Upcoming webinar: Understanding minimal residual disease (MRD) testing for myeloma patients in Canada
MRD is becoming an increasingly important part of myeloma care, but what does it actually mean for patients? This webinar will explain what MRD is, how it is measured, and why it matters.
Date: November 17, 2026
Time: 4:30 pm ET
Register
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Upcoming webinar: Comprendre le dépistage de la maladie résiduelle minimale (MRM) pour les personnes atteintes d'un myélome au Canada
If you would prefer to learn about minimal residual disease (MRD) in French, join the French webinar.
Date: September 8, 2026
Time: 7:00 pm ET
Register
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10th annual Sam’s Monte Carlo Casino Night
Get ready for an unforgettable evening of casino games, dinner, dancing, and so much more.
Date: October 24, 2026
Time: 5:00 pm ET
Where: Auberge Des Gallant, Sainte-Marthe de Rigaud, QC
Early bird ticket deadline: September 30, 2026
Buy your tickets
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The Défi Everest Challenge is back for another year
This event gets a community moving, supports physical activity in schools, and raises funds for multiple myeloma cancer research.
Date: September 19, 2026
Where: Rotary Park, Dieppe, NB
Learn more and register
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Spotlight on Miriam de Jong
"My myeloma journey started months before I was officially diagnosed in February 2024 at age 53. When the diagnosis finally came, it was actually a relief. Finally, an explanation for all the pain and my inability to lift my arms.
Things started in the fall of 2023. Over Thanksgiving weekend, I had COVID and coughed so much that I assumed I had pulled muscles in my ribs. That had happened before..."
Read Miriam's story
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Video of the month:
Multiple myeloma exercise program
Myeloma Canada is proud to have partnered with REVIVE Physiotherapy & Exercise on an exercise program. With the help of physiotherapist Alan Richter, discover how to improve your fitness, activate your blood flow, and better manage the pain and side effects of myeloma and/or its treatments.
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A peek at the PAC
Rinat Avitzur congratulates Shawn Crossman on being elected mayor of Moncton
"I am proud to call Shawn a colleague and friend, and I know our entire council joins me in congratulating him on this well-deserved achievement. We are fortunate to have him representing the Atlantic provinces on the Patient Advisory Council, and I hope you enjoy learning more about his remarkable journey."
Read more
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Multiple Myeloma March Calendar
This fall, step up with your community and join the 18th annual Multiple Myeloma March. This 5 km walk is a family-friendly day of hope and solidarity. Patients, families, caregivers, friends, and neighbours come together, fundraising to propel research, improve care, and support patient programs.
Join us today!
| | | Saturday | Sunday | |
| August 23
Corner Brook, NL | | August 29
Airdrie, AB |
| | September 5
Cornwall, ON | September 6
Vancouver Island, BC | | September 12
Hamilton-Niagara, ON
Sacré Coeur, QC
Saguenay, QC | September 13
Peterborough, ON
Thunder Bay, ON
Windsor/Essex County, ON
Winnipeg, MB | | September 19
Eastern Townships, QC
Kelowna, BC
Kingston, ON
Mississauga, ON
Prince George, BC
Regina, SK
St John's, NL | September 20
Charlottetown, PE
Laurentides, QC
Newmarket, ON
Ottawa, ON
South Shore (Sainte Julie), QC
Saskatoon, SK | | September 26
Halifax, NS
Oshawa, ON | September 27
Brampton, ON
Kitchener-Waterloo, ON
Montreal West Island, QC
Quebec City, QC | | October 3
Scarborough, ON
White Rock, BC | October 4
Barrie, ON
Vancouver, BC
Montreal East, QC
Rouyn Noranda, QC | | October 17
Sudbury, ON | October 18
Bowmanville, ON | | | |
Avant-première : Rendez-vous sur MYELOME.CA et repérez cette icône dans le coin inférieur droit. Faites connaissance avec Myca, un nouveau chatbot d'intelligence artificielle conçu pour répondre à vos questions sur le myélome. Myca est encore en développement, mais n'hésitez pas à l'essayer.
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Myeloma Canada's mission: To improve the lives of all Canadians affected by myeloma by accelerating access to the best care while advancing research toward its cure and prevention.
Follow us on social media for the most up-to-date information and resources:
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Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca.
To donate to Myeloma Canada please visit myeloma.ca or call us toll-free at 1-888-798-5771.
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| Myeloma Canada charitable number: 862533296RR0001 | | | | | |
