The Chromosome 18 Registry and Research Society

2024 CONFERENCE

May Happenings!

We NEED to Hear From You!

Every two years, Chromosome 18 puts out our Member Survey to collect valuable data and information from our community and families. This survey is available to every C18 family and we have one survey for our U.S. and Canada families and one for our International families. This survey closes on June 9th at 11:59pm CT (US) and it is linked below!

U.S. / CANADA

INTERNATIONAL

Conference Registration Closes June 7th!

Registration will be closing June 7th for our conference in Charlotte, NC! Register before the deadline if you are coming to Charlotte!

Volunteers are Needed for Conference!

VOLUNTEER HERE

Upcoming Events

EVENTS

Conference Merch - Order Before June 2nd!

Don't miss out on this great selection and you can pick up your items at the 2024 Chromosome 18 Annual Family Conference in Charlotte, North Carolina! Not attending? No problem! You can any items and ship to your home.

Orders must be placed by June 2nd!

MERCH

2024 Website Re-Design

Chromosome 18's new website has officially launched! Our new design has specific places for our new families, easier navigation and a much more seamless design to make chromosome 18 information readily available for our families and community. A huge thank you to Randy and Donna Hidalgo with OnPointPlus for volunteering countless hours to make this happen!

NEW WEBSITE

Starfish Dinner & Dance Tables are Available!

Are you attending the conference in Charlotte, NC in July? Interested in having your own family table at the Starfish Dinner & Dance? Learn more now on how you can create a fundraiser page for your table or purchase one today!

FAMILY TABLES

Region Changes for U.S. Families

For our U.S. families, the way our regions are divided up are changing slightly! In green, we will now have the Southwest become the West and a few more states will be going to our Rocky Mountain Coordinators and West coordinator! This won't change anything on your end accept a slight coordinator change for 4 states. Check out the full details by clicking below!

NEW REGIONS

Chromosome 18 Italy Summer Conference!

Chromosome 18 families are coming together for a fun summer camp in Monte Terminillo, Rieti, Italy! Join them 5-7 July 2024! Learn more below.

ITALY CAMP

Clinical Research Center

Chromosome 18 has given $89,000 total this year to the Clinical Research Center for C18 research! Pictured here is Dr. Cody and her team. It's only with your help and support that allows this vital research to continue.

Welcome to the Chromosome 18 Family!

Amanda Cooper, Trisomy 18, Southeast

Heather Hamm, Ring 18, Great Plains

Andrea Cowan, 18p-, West

Zaniel Procopio, Ring 18, Germany

Amber Mullen, 18p-, Texas Area

Elana Aitken, 18p-, Australia

Tasha Myrick, 18q-, Southeast

Elizabeth Ridgley, 18p-, Texas Area

Karen Cassidy, 18p-, Southeast

Chromosome 18 Clinical Research Center

A New Publication - Ring 18 Book Chapter

READ HERE

April Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with Self-Advocate, Taylor Anama! Taylor shares about his life, school, the conference and much more!

Thank you and Happy Birthday to Matt Miller, Carolyn Brennan, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers!

Congrats Alyson!

What an accomplishment! This past weekend, self-advocate Alyson Weatherhead won 2 gold medals and 1 bronze medal at the 2024 Special Olympics! Congrats Alyson!

210-657-4968

office@chromosome18.org